Katherine Schneider graduated from Yale University with a Masters Degree in Public Health. She is a licensed genetic counselor in Massachusetts. She has 25 years experience in cancer genetic counseling. Ms. Schneider is a Senior Genetic Counselor at the Dana-Farber Cancer Institute. She works in the Center for Cancer Genetics and Prevention and the Pediatric Cancer Genetic Risk Program, and helps oversee the Dana-Farber Cancer Genetics Satellite and Affiliate Program. She is also a member of the Dana-Farber Ethics Committee. Ms. Schneider previously served as President of the National Society of Genetic Counselors and wrote the textbook: “Counseling about Cancer: Strategies for Genetic Counseling”, which is currently in its 3rd edition.
Jenn Perry – Co-Chair
Jenn is married to her best friend and love of her life, Bert, with two wonderful girls. Samantha is 20, just graduated, and started her career in Hairdressing, and Lexi is 11. Jenn currently works with Dunkin’ Donuts Brand serving as an Operations Manager. Jenn enjoys many activities, but her passion is competitive show jumping in the equestrian world. In fact, she has designed and executed two different annual walks for cancer, one of them, Hoofin’ For The Cure, involved her horse Maximus.
Jenn is a 10 year breast cancer survivor who was diagnosed with Li-Fraumeni Syndrome just a few years back. Jenn is committed to advocating for all those who battle cancer, whether they are a patient or a researcher, in creating positive and hopeful outcomes. She always knew it was a possibility that she could develop cancer, as her mother died of breast cancer after an 8 year fight. Her mother taught her to be positive and live her life to the fullest no matter what the circumstances; to see the glass half full with her mother’s inspiration at the forefront.
Jenn knew she found a way to help create solutions when she attended the first Li-Fraumeni Conference in 2010. She is very honored and excited to be the President of the Li-Fraumeni Syndrome Association, Inc. Jenn knew she finally found an avenue in which to make a difference and effect change in an area that has affected not only many members of her family, but so many families around the world. She envisions a world someday where her children, grandchildren, and future family, won’t have to live in fear of the disease we know as cancer.
Rose B McGee, M.S., C.G.C.
Rose completed her genetic counseling training at the University of Pittsburgh School of Public Health. She is a certified genetic counselor practicing at St. Jude Children’s Research Hospital in the Division of Cancer Predisposition. She sees families in a busy clinic, evaluating for cancer predisposition syndromes including Li-Fraumeni syndrome. As well, she is involved in research endeavors that study incorporation of genomics into clinical care and psychosocial impact of cancer surveillance in families with predisposition syndromes. Rose is thrilled to interact further with families and medical providers affected by Li-Fraumeni syndrome through the LFSA.
Bita Nehoray, M.S., L.C.G.C.
Bita Nehoray, M.S., L.C.G.C., is a licensed board-certified genetic counselor specializing in cancer genetics. She received her Master’s degree in Human Genetics and Genetic Counseling from Stanford University. Bita joined the City of Hope Division of Clinical Cancer Genomics in 2012, where she provides cancer genetics services for patients and families suspected to have a hereditary predisposition to cancer, with a focus in Li-Fraumeni syndrome. She is fluent in Spanish and Farsi, and is committed to advancing the provision of cancer genetics services to medically underserved and culturally diverse populations. Other clinical responsibilities include providing pro-bono cancer genetic counseling services to underserved Latino families through an outreach program established by the Division of Clinical Cancer Genomics and supported through government and foundations grants and compassionate funding. Current research projects include assessing the influence of pre-consultative interventions in the uptake of genetic counseling services in Latinas, and understanding the prevalence of somatic TP53 mutations and how they can confound genetic test results and clinical outcomes. She is an active member of the National Society of Genetic Counselors.
Kristen Shannon M.S., L.C.G.C.
Ms. Shannon received her bachelor’s degree from the College of the Holy Cross and her master’s degree in Human Genetics from Sarah Lawrence College. She has been a practicing genetic counselor at the Massachusetts General Hospital Cancer Center’s Center for Cancer Risk Assessment (CCRA) since 1997. In addition to her clinical practice, Ms. Shannon has served on various subcommittees of the National Society of Genetic Counselors. Ms. Shannon is also a member of the NCCN Genetic/Familial High-Risk Assessment: Breast and Ovarian panel. She was an integral part of the Massachusetts Genetic Counselors Licensure task force and served on the Massachusetts Board of Licensure for Genetic Counselors for eight years. She has lectured and published widely in the fields of cancer genetics and cancer genetic counseling.
Kristin Zelley, M.S.
Kristin Zelley is a board-certified and licensed genetic counselor who has worked in the Division of Oncology at the Children’s Hospital of Philadelphia since November 2010. As the primary genetic counselor for the Cancer Predisposition Program, she works with a multidisciplinary team that addresses the needs of children with genetic cancer predisposition. She has a strong interest and knowledge foundation in genetic predisposition to cancer in children, including conditions such as LFS. Her research interests include the psychosocial impact of cancer predisposition syndromes on children and their families, ethical issues surrounding genetic testing of children, and communication with children regarding genetic testing and results.
Wendy Kohlmann, M.S., C.G.C.
Wendy Kohlmann, M.S., C.G.C., is a board-certified genetic counselor with a master’s degree in genetic counseling from the University of Cincinnati and a bachelor’s degree in zoology from the University of Wisconsin. She has worked as a genetic counselor at the University of Texas-M.D. Anderson Cancer Center in Houston and the University of Michigan Comprehensive Cancer Center in Ann Arbor. She began working at Huntsman Cancer Institute as a research associate in 2006. Wendy Kohlmann’s research interests include the inherited basis of melanoma and pancreatic cancer, psychosocial and behavioral outcomes of genetic counseling, and issues for children and adolescents with hereditary cancer syndromes.
Harriet Druker, M.S.
Harriet Druker, M.S., has been a Genetic Counsellor in the Cancer Genetics Program in the Division of Hematology and Oncology at the Hospital for Sick Children, Toronto, since 2000. Prior to joining the Cancer Genetics Program, she worked in prenatal diagnosis and clinical and metabolic genetics. She received her Master of Science degree in Genetic Counselling from McGill University in 1996. Harriet is a Lecturer in the Department of Medical Genetics and Microbiology at the University of Toronto as well as a clinical supervisor to students in the M.Sc Program in Genetic Counselling and to genetic residents and fellows. As a genetic counsellor, Harriet Druker provides comprehensive cancer genetic consultations to individuals and families with a history of cancer. She develops extensive pedigrees and obtains documentation for cancer diagnoses. Genetic counselling regarding personal risk for developing cancer and the availability of screening is offered to each member of a family at risk. Where predictive testing is appropriate, education is offered about the genetics of cancer, prenatal diagnosis, the testing process, and the implications of test results. Families are provided with ongoing support throughout this process.
Kami Wolfe Schneider, M.S., C.G.C.
Kami Wolfe Schneider, M.S., C.G.C., is a Senior Instructor working full time for Children’s Hospital Colorado in the Hematology, Oncology, and Bone Marrow Transplant Division since June 2013 at the University of Colorado. A 2005 graduate of the University of Cincinnati’s genetic counseling program and ABGC board certified since 2007, she worked as a cancer and prenatal genetic counselor in Memphis, TN for more than 4 years, at which time she provided genetic counseling to mostly adults, but also some children referred from St. Jude Children’s Research Hospital, with or at-risk for Li-Fraumeni syndrome. She then joined Children’s Hospital Colorado’s Clinical Genetics and Metabolism department in December 2009. She initiated and developed the hospital’s first pediatric cancer genetic counseling clinic which began in March 2011, and she has since expanded the genetic counseling services in the Division of Hem/Onc/BMT to include 2 full time genetic counselors covering specialty clinics including Solid and liquid tumor, Neuro-Oncology, Ortho-Oncology, Survivorship, Cancer Predisposition, Bone Marrow Failure, and others. Kami has helped identify, counsel, connect, and coordinate surveillance for children with Li-Fraumeni syndrome in these, as well as in General Genetics, clinics. Kami has co-authored multiple publications on pediatric cancer genetic counseling, and she was the founding chair of the Pediatric Subcommittee of the NSGC’s Cancer Special Interest Group in 2014.
Chieko Tamura, M.S.
Chieko Tamura, M.S., studied genetic counseling as a Fulbright scholar at the joint graduate program of the National Human Genome Research Institute and Johns Hopkins University School of Public health, graduating in 2003. By 2005, she was certified as a genetic counselor by the American Board of Genetic Counseling as well as the Japanese Board of Genetic Counseling. She is a board member of the Japanese Association of Certified Genetic Counselors, and worked as an intern genetic counselor in the USA. She has worked in a variety of settings to include prenatal, pediatrics, adult genetics, cancer genetics, neurogenetics, and infertility, etc. at many different medical institutions, including the Japan’s National Center for Child Health and Development, several university hospitals and major fertility clinics. She has also worked as an associate professor at the genetic counseling training graduate program at Ochanomizu University of Tokyo, and served as co-director of the program. Chieko has also worked in psychosocial genetic counseling, grief counseling, disability studies, research methodology, and bioethics.
Sarah Scollon, M.S., C.G.C.
Sarah Scollon, M.S., C.G.C. is a genetic counselor with the Cancer Genetics and Genomics Program at Texas Children’s Hospital. Her clinical focus is on genetic counseling for patients and families at risk for or diagnosed with pediatric cancer predisposition syndromes including Li Fraumeni syndrome. Ms. Scollon’s research interests include pediatric cancer predisposition syndromes and educating healthcare providers in recognizing at risk patients and families in order to provide education, advocacy, and increase the adoption of prevention and screening for future cancers. She also has conducted research involving the incorporation of genomic sequencing into the care of children with cancer. Her ongoing research will look into the incorporation of genetic counseling into personalized medicine.