Education is at the heart of LFSA’s mission. It is with great pleasure that we announce the launch of our Global LFS Education and Awareness Campaign. For the first time, families and medical providers will have a go-to source for information and resources about LFS. Specifically, we will have a resource to communicate critical information regarding: what LFS is, how LFS is diagnosed, why diagnosis is critical; and where to get additional resources and information.
This information is intended to empower our community. For those already diagnosed with LFS, we hope to stimulate critical conversations between patient and health care providers that will lead to optimal care.
It will also serve as a resource for patients to educate medical providers to ensure that LFS diagnosis is considered in the treatment of many conditions, particularly the use of radiation therapy in cancer treatment. For those who are yet to be diagnosed, we hope to communicate the role and importance of genetic testing in diagnosis.
Harnessing our global LFSA network, we will distribute our Awareness Brochures across the world. Additionally, we will partner with Myriad Genetics to distribute this information through their genetic testing network.
Genetics can’t be changed, but the way we approach our healthcare can be!
Help us empower the LFS and medical communities with information. Please fill out the form below to request complimentary copies of the LFS Awareness Brochure.
Additionally, the brochure is available online and is available to be translated into over 80 languages: (click here)
Brochure Request Form
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