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Education is at the heart of LFSA’s mission. It is with great pleasure that we announce the launch of our Global LFS Education and Awareness Campaign. For the first time, families and medical providers will have a go-to source for information and resources about LFS. Specifically, we will have a resource to communicate critical information regarding: what LFS is, how LFS is diagnosed, why diagnosis is critical; and where to get additional resources and information.

This information is intended to empower our community. For those already diagnosed with LFS, we hope to stimulate critical conversations between patient and health care providers that will lead to optimal care.

It will also serve as a resource for patients to educate medical providers to ensure that LFS diagnosis is considered in the treatment of many conditions, particularly the use of radiation therapy in cancer treatment. For those who are yet to be diagnosed, we hope to communicate the role and importance of genetic testing in diagnosis.

Harnessing our global LFSA network, we will distribute our Awareness Brochures across the world. Additionally, we will partner with Myriad Genetics to distribute this information through their genetic testing network.


Genetics can’t be changed, but the way we approach our healthcare can be!

Help us empower the LFS and medical communities with information. Please fill out the form below to request complimentary copies of the LFS Awareness Brochure.

Additionally, the brochure is available online and is available to be translated into over 80 languages:  (click here)

Brochure Request Form


* These fields are required.

LFS Association

We are families, like you who have been devastated by the effects of Li-Fraumeni Syndrome, a hereditary cancer predisposition syndrome. Our hopes are to educate, raise awareness and find better screening programs and treatments for LFS.


Medical Resources

We've compiled a list of doctors available to
answer your questions, LFS support and
treatment. They specialize in many different
areas, which have been listed with their


LFS News

Newly released articles from Drs. Frederick Li and Joseph Fraumeni.


Community Events

Team Faces of LFS Color Run
Join or support Team Faces of LFS in The Color Run™ on June 11th, 2017!


LFS Webinars

Check out our library to watch past LFS
webinars, and to find out about
upcoming webinars!

Learn more...

LFS Awareness Brochure

Myriad Genetics is proud to partner with LFSA to launch the global LFS Education and Awareness Campaign!