We are families, like you who have been devastated by the effects of Li Fraumeni Syndrome, a hereditary cancer predisposition syndrome. Our hopes are to educate, raise awareness and find better screening programs and treatments for LFS. By forming relationships with and supporting the variety of researchers and medical staff who can help achieve this, we wish to help provide a better understanding of a complex syndrome to those who need it. We welcome communication with all professionals, researchers, scientists, doctors, patients and families in the hopes that the bridges formed by these communities will lead to an end of the devastating effect of Li Fraumeni and Li Fraumeni Like Syndromes.
In November, 2010 with the support of the National Institute of Health, in Washington D.C., United States and Li Fraumeni world medical leaders we met at the LiFraumeni Conference for the first time. In December, 2010 we formed the LFS Association and our Board of Directors.
It is with heartfelt appreciation that we acknowledge Sabre Imageryfor donating this website, which is our first ever communication tool linking our worldwide LFS community together. Without Sabre Imagery, none of this would have been possible – Thank you!