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Who has LFS?

There are around 500 known families worldwide that have Li-Fraumeni Syndrome, although the exact numbers are not known. LFS does not affect one particular age, gender or race. Women tend to have a higher risk of developing cancer over their lifetime than men. Half of LFS cancers develop in childhood. Not all people with Li-Fraumeni Syndrome develop cancer.

Li-Fraumeni Syndrome is known as the “familial cancer syndrome.” Many LFS cancers are hereditary, genetic cancers. Consider genetic testing for cancer if you have a family history of cancer.

LFS Association

We are families, like you who have been devastated by the effects of Li-Fraumeni Syndrome, a hereditary cancer predisposition syndrome. Our hopes are to educate, raise awareness and find better screening programs and treatments for LFS.

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Medical Resources

We've compiled a list of doctors available to
answer your questions, LFS support and
treatment. They specialize in many different
areas, which have been listed with their
information.

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LFS News

Personal Appeal for Notes of Appreciation for LFS Founding Fathers.

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Community Events

Team Faces of LFS Color Run
Join or support Team Faces of LFS in The Color Run™ on June 11th, 2017!

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LFS Webinars

Check out our library to watch past LFS
webinars, and to find out about
upcoming webinars!

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LFS Awareness Brochure

Myriad Genetics is proud to partner with LFSA to launch the global LFS Education and Awareness Campaign!


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