Because of the wonderful support provided by our donors this past year, the LFS Association has been able to provide three camp sponsorships, potentially earmarked for LFS children, to Special Love’s hallmark program, Camp Fantastic!* Camp Fantastic, located in Front Royal, Virginia, offers children who are within three years of cancer treatment an opportunity for
In April, your LFS Association brought awareness to the thousands and thousands attending the American Association for Cancer Research Annual Meeting 2017 in WDC, with the assistance of ace volunteer Margie Menendez Fernandez and volunteer board member Holly Fraumeni!
Saturday, March 18th, 2017, LFS survivor Chiky Fernandez promoted LFS awareness at Palmer Trinity School’s International Festival Open to the public, the school’s “signature event” celebrates Miami’s multicultural community and student initiatives, such as Chiky’s “Cancer Club!” Thank you, Chiky, for all that you’ve done and continue to represent – you are quite the role
Pampering pets for the LFSA! Jordan and Mackenzie are two amazing young ladies who have chosen to raise funds for the LFS Association in honor of their dear friend, Fran, through a terrific initiative called Kid Boost! Though their ongoing dog walking and grooming activities are based in Georgia, you can still support their efforts
Advocacy Matters! March 1st wrapped up our last day of Rare Disease Week on Capitol Hill. Can you find Kathleen Higgins in this photo? She is the champ still “shouting” for LFS awareness!
Treasured LFSA volunteer Kathleen Higgins greets LFSA Medical Board Advisor Dr. Sharon Savage of NCI’s Division of Cancer Epidemiology and Genetics here at Rare Disease Day at NCI in Bethesda, Maryland!
Donations matter!! On this Giving Tuesday, the LFS Association gave funds which will support LFS cancer research and early detection screenings for children with LFS enrolled in the Pediatric Whole Body MRI Study at the Dana Farber Cancer Institute (DFCI). We graciously thank you for your continued support!! (Photo: from left to right, portrait of
Our friend and LFS advocate, Kathleen Higgins speaks about the importance of genetic testing in detecting Li-Fraumeni syndrome in an interview for the Rare Disease Report. Thank you, Kathleen, for helping get the word out!!! (Published 09/30/2016)
The National Society of Genetic Counselors Annual Education Conference in Seattle wrapped up Friday evening (09/30/2016) with a fundraiser benefiting the LFS Association by Myriad Genetic Laboratories. The benefit was “a hit,” with a line wrapped around the sidewalk to attend! Thank you, Myriad, from the bottom of our genes!!!
Our volunteer board members, Vice President Susan Faulkner (center left) and Co-Founder/Marketing Chair Debbie Soprano (center right), are at the National Society of Genetic Counselors Annual Education conference in Seattle this September 2016 spreading awareness of LFS for you!! Go, Team LFSA!!!
