Myriad Genetic Laboratories is co-sponsoring the 35th National Society of Genetic Counselors Annual Education Conference being held in Seattle, Washington, this week. Myriad will be presenting important new scientific data that will help genetic counselors. We are also thrilled that Myriad will be hosting an event to raise funds for several patient advocacy groups, to
Kneaders Bakery & Café (see locations) is donating 100% of all proceeds from the sale of sugar cookies in the shape of elephants to Dr. Joshua Schiffman’s research at the Huntsman Cancer Institute on elephants, cancer and the p53 tumor suppressor gene, throughout September. Even if you have no Kneaders near you, you can
NBC Channel 7, San Diego: After the loss of his family to LFS, Michael James celebrates the life he had with daughter, Dolly. Thank you, Mr. James, for your continued fight and support by raising awareness of LFS and the LFS Association. Watch the news here: 01/23/2016.
Lauren, Chandler and Kirk Rhinehart are bicycling across the country in honor of Ashleigh Rhinehart. Read Ashleigh’s story here, and how she now feels empowered knowing about her LFS.
TitanTough21! This Saturday, October 17th, 2015, Dr. Joshua Schiffman will be the keynote speaker at the official launch event of the TitanTough21 Foundation for LFS! The event starts at 11:00 AM, MST, and although it will be held in Salt Lake City, Utah, you can watch the live WEBCAST at www.titantough21.org. Read more from ToughTitan21
“Knock Out Genetic Cancer!!” Read about how Heather Henstock, Erin Livingstone, and Noelle & Greg Johnson raised funds for the LFSA by racing in the Boulder Sunset Sprint Triathlon! It was a grueling hot day, 95 degrees by the time they started, in fact – yet everyone, including Noelle, successfully completed the race strong, and
Kathy and James Higgins hosted a highly successful event in Waverly, NY, this past Saturday, celebrating the cherished lives of their daughters, Maureen and Kerry, while raising public awareness and media attention to the Li-Fraumeni Syndrome: “We’re just trying to let the public know that this is a problem out there and that if they
More great news – we were able to do it again! Because of our wonderful supporters, the LFS Association has been able to provide additional camp sponsorships, potentially earmarked for LFS children, as well as LFS families! At The Hole in the Wall Gang Camp, children with all sorts of serious disorders get to celebrate
