A Message from the LFS Association
Dear LFS Family,
I wanted to personally reach out to you as the Coronavirus (COVID-19) continues to affect our lives around the globe. This virus (like many before it), is unbiased, it doesn’t play favorites, and impacts each one of us, no matter where we live, work or call home.
All of us at the Li-Fraumeni Syndrome Association take safe-guarding our community extremely seriously. The well-being of every patient, family member, medical professional, and our board and committee members, is our utmost priority. Similar to many organizations around the globe, we are postponing any travel and attendance to any related events for our committee and board members. We are taking advantage of virtual meetings and convenings to ensure our work and mission continues.
We are blessed to have the best physicians and genetic counselors from around the world. They are here to support our community with various resources if the need should arise, and ensure our patient community and their families are as safe as possible until this threat of COVID-19 dissipates.
Here are a couple of key considerations:
If anyone needs to be connected to a professional, please don’t hesitate to reach out to us at info@lfsassociation.org at any time, and we will assist in every way possible.
Please know that we will continue to stay vigilant and monitor any continuing developments in order to best evaluate any potential impact to our LFS community. We will update you all when appropriate. Your health and safety is always at the forefront of our hearts and minds, and we will do everything in our power to safeguard it.
On a positive note, our symposium in the fall is full steam ahead as we anticipate life to be back in the regular routine of things by October. This will certainly be a special time where we can count our blessings to be together again, a place where we can enrich our minds and souls, and connect personally once more.
Until we meet again – stay healthy in body and mind, connect with those you care about around the world with phone calls, Skype, FaceTime and social media. Remember, connecting is more than just a handshake and a hug!
Take care and as always…“Use your smile to change the world; don’t let the world change your smile.”
Jenn Perry
President/Co-founder & Patient
Li-Fraumeni Syndrome Association
Watch the Li-Fraumeni Syndrome & COVID-19 Webinar
COVID-19 Information & Resources
National Cancer Institute: https://www.cancer.gov/contact/emergency-preparedness/coronavirus
World Health Organization: https://www.who.int/emergencies/diseases/novel-coronavirus-2019
Centers for Disease Control and Prevention: https://www.cdc.gov/coronavirus/2019-ncov/index.html
Stress Coping Resources for COVID-19
Centers for Disease Control and Prevention – identifying stress and tips for coping
YouTube – source for free workout videos, including yoga and HIIT workouts
Down Dog App – apps for yoga, barre and HIIT (free deals through 5/1, which may extend in the future)
Insight App – free meditation app, includes newly uploaded videos about how to deal with stress and anxiety relating to COVID
Headspace App – meditation app that includes some free content for coping with COVID
Buddhify App – meditation app
Talkspace App – connects you with a therapist remotely (does require payment)