The LFS Association’s Genetic Counselor Advisory Group has produced yet another wonderful resource – a booklet explaining LFS that is geared towards 8 – 13 year old children. This booklet supports information about Li-Fraumeni syndrome (LFS) that you and the health care team have shared with your child.
Each child and each family is different. This booklet may have details that you or the health care providers have not shared with your child yet. Please review this booklet before passing it along to your child to see if the information is right for your child at this time. Your child might like reading this booklet with you, an older sibling, or another adult. That way your child can ask questions and have you explain things. Your genetic counselor, doctor, or other health care provider can help with questions you or this booklet are unable to answer.
We hope “LFS and Living My Best!” is helpful for you and your child.