Categories Archives - Page 6 of 6 - Li-Fraumeni Syndrome Association

LFS

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Hello, My name is Erika and my son has LFS. He was diagnosed with Acute Lymphoblastic Leukemia December 1, 2010. He went into remission on Dec. 29, 2010 and responded well to treatment. We now know because of a hypodiploid (related to LFS) he would need to have a transplant. Well he did, he had

Join Our Webinar – June 26, 2013

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Webinar: LFS Talk with Dr. Judy E. Garber Date: Wednesday, June 26, 2013 Time: 8:00pm-9:30pm (EST) Speaker: Judy E. Garber, MD MPH, Director at the Center for Cancer Genetics and Prevention at Dana-Farber Cancer Institute

Watch the Webinar!

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Watch the Living with LFS Webinar from May 21, 2013! Guest Speakers: Wendy Kohlman, Manager of Family Cancer Assessment Clinic, Huntsman Cancer Institute and Amanda Gammon, Genetic Counselor, Huntsman Cancer Institute Host: Bonita Kline, LFS Association Family Support Chair

Join Our Webinar – May 21, 2013

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Webinar: “Living with LFS” followed by Q&A Date: May 21, 2013 Time: 8:00-9:30pm (EST) Guest Speakers: Wendy Kohlman, Manager of Family Cancer Assessment Clinic, Huntsman Cancer Institute and Amanda Gammon, Genetic Counselor, Huntsman Cancer Institute Host: Bonita Kline, LFS Association Family Support Chair

Help please!

Posted by tracidavis

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I received news that I am positive for LFS this week. My doctor recommended this site for good information. I was hoping maybe someone could give some useful advice, things I should know, etc. thanks!

Welcome

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Welcome to the LFS Association forum. Please feel free to post any messages or information that you would like to share. This forum is here for the exchange of information and to provide the opportunity for people affected in any way by LFS to communicate with and help each other out. You are also invited

LFS Launches New Website!

Posted by LFS Association

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Welcome! The LFS Association has launched a new website, a resource designed to provide a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community. Be sure to