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Welcome to the LFS Association Forum, a way to connect with others affected in any way by LFS! Please feel free to post messages or information you would like to share. Before you post a message, you must register. If you have already registered, please log in.

A Cancer Family Syndrome in Twenty-four Kindreds

By Frederick P. Li, Joseph F. Fraumeni, Jr., John J. Mulvihill, William A. Blattner, Margaret G. Dreyfus, Margaret A. Tucker, and Robert W. Miller

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Le Tour de Lauren

header On August 18th, Lauren, Kirk and Chandler Rhinehart completed their 6 week bike ride from New Mexico to New York to raise money for LFSA! Way to go guys! The trio started their journey on July 5...

LFSA launches “Faces of LFS” campaign!

SPECIAL REQUEST TO OUR LFS COMMUNITY!  The LFS Association is launching a “Faces of LFS” campaign and is currently seeking submissions of “everyday life” of LFS families. They can be of family or individual activities, head shots, candid shots, etc. –...

Join Us Friday, October 2nd

salute Join us Friday, October 2 at 6pm! Stonington Vineyards Stonington, CT 523 Taugwonk Rd Stonington, Connecticut 06378 Come join us for an evening of wine tasting, dinner, acknowledgments and awards, in support of

Dr. Frederick Pei Li Obituary

Frederick Pei Li, MD passed away in Brookline on June 12, 2015. Born in Canton, China in 1940, he was the son of Han Hun Li and Chu Fang Wu. His father, General Li, fought the Japanese during the Sino-Japanese war. His mother Chu Fang...

Dr. Frederick Pei Li, 1940-2015

It is with heavy hearts that we learn that Dr. Fred Li, co-discoverer of the Li-Fraumeni Syndrome, passed away. As noted by Dr. Joseph Fraumeni, Dr. Li had a truly remarkable career, emerging as a leader in the field of cancer epidemiology, genetics, and prevention....

Accepting Applications for Camp Fantastic!

Because of the wonderful support provided by our donors this past year, the LFS Association has been able to provide three camp sponsorships, potentially earmarked for LFS children, to Special Love’s hallmark program, Camp Fantastic! Camp Fantastic, located in Front Royal, Virginia, offers...

LFS Association

We are families, like you who have been devastated by the effects of Li-Fraumeni Syndrome, a hereditary cancer predisposition syndrome. Our hopes are to educate, raise awareness and find better screening programs and treatments for LFS.


Medical Resources

We've compiled a list of doctors available to
answer your questions, LFS support and
treatment. They specialize in many different
areas, which have been listed with their


LFS News

WETB’s Gayle Ong was one of several reporters covering the event and story of LFS and Mo Songs for Kerry.

Read More…

Community Events

Carly Grant – Mohawk Hudson River Marathon 2017
Support Carly and the Li-Fraumeni Syndrome Association as she raises money and trains for the Mohawk Hudson River Marathon on October 8th!


LFS Webinars

Check out our library to watch past LFS
webinars, and to find out about
upcoming webinars!

Learn more...

LFS Awareness Brochure

Myriad Genetics is proud to partner with LFSA to launch the global LFS Education and Awareness Campaign!