The 4th International LFS Association Symposium hosted by The Hospital for Sick Children and in partnership with the LiFE Consortium was held April 25 through 29, 2018, under the auspices of The Hospital for Sick Children, in Ontario, Canada. Click here to see event highlights, including presentation videos and photo gallery.
Find out more »Please join us for the “Ask a Genetic Counselor” Webinar on Sunday, May 19th at 2pm! Topic: Talking to Kids About LFS Take advantage of this special opportunity to ask questions and get valuable information on talking with children about LFS from the LFS community's most trusted genetic counselors. Upon registering, you'll have the opportunity to submit your questions. The genetic counselor will address these questions first, at the beginning of the Q&A session. You will still have the opportunity…
Find out more »Next weekend, June 28, 29, & 30, in Ancona, Italy, is the third annual “3v3 con Dade,” a three-day basketball tournament in memory of Davide Pagani. Donations collected by his beloved mother and his friends will be forwarded to the LFS Association to benefit our Youth Program initiatives! Follow and support Davide’s friends and family on Facebook!
Find out more »Mo Songs for Kerry 6th Annual Cancer Fundraiser! July 29, 2019 10am to 8pm Sayre, PA Our community event will feature a large craft show, music festival, BBQ, car was, corn hole tournament and games for the kids. Click here to learn more!
Find out more »The LFS Association is now accepting registrants for our second Youth Workshop to be held August 23rd, 24th and 25th! Our inaugural pilot program, first held in 2017, was hosted at the Huntsman Cancer Institute and was a terrific experience for the 21 teens with LFS who traveled in from around the world! The friendships that developed, not only between the teens, but also amongst the parents, have proven to be treasured relationships since our first workshop. This year’s workshop…
Find out more »Noelle’s LFS Fight Club is taking a hike for its fifth annual fundraiser to benefit the Li-Fraumeni Syndrome Association. Noelle Johnson and her team are climbing to the top of Horsetooth Mountain, the most iconic rock in Fort Collins, CO. The six-mile hike features a 1,600-ft. elevation gain and a challenging scramble to the summit. We’re hiking for the Johnson family and others like them with Li-Fraumeni syndrome (LFS), a rare inherited genetic cancer disorder that greatly increases the risk of…
Find out more »The 2nd Annual LFSA Fall Invitational will be a fun-filled gymnastic competition and fundraiser to benefit our youth with Li-Fraumeni syndrome; a hereditary cancer predisposition syndrome. L2-L10 & Xcel Competitions Team Competition Special Drawing! November 9th & 10th, 2019 Chicopee Comprehensive High School 617 Montgomery St #1 Chicopee, MA
Find out more »Join us Saturday, February 29, 2020, 6:00 pm (Check-in begins at 4:30pm) Mardi Gras Lanes 4800 Madison Ave, Sacramento, CA 95841 $25 per person Includes: 3 “No Tap” Format Games, Pizza & Soda Live Music Featuring – The Cutbacks Download Flyer
Find out more »Forging a Path Towards Resilience and Cultivating Greater Happiness June 29th, 4-5pm EST Join us for a conversation surrounding the topic of resilience with author Gina Vild. Vild is the co-author of The Two Most Important Days – How to Find your Purpose and Live a Happier, Healthier Life and is currently writing her second book about resilience. As we navigate these times of uncertainty, resilience becomes an important factor in maintaining our sense of happiness and health. During the…
Find out more »Register Today for the LFSA Virtual Youth Workshop! Saturday, September 12, 2020 • 9:30am to 12:30pm EST: Morning Session, 13-18 Age Group • 1:00pm to 2:00pm EST: Combined Session , Both Age Groups • 2:00pm to 5:30pm EST: Afternoon Session, 19-25 Age Group Download the Agenda! Once registered for the Youth Workshop, we will send you an invite with the meeting details and access information prior to the event.
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