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X-WR-CALDESC:Events for LFS Association
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DTSTART;TZID=America/New_York:20250925T100000
DTEND;TZID=America/New_York:20250925T110000
DTSTAMP:20260404T200031
CREATED:20250919T141714Z
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UID:13381-1758794400-1758798000@www.lfsassociation.org
SUMMARY:AYA-RISE Webinar: Cancer Risk Communication for AYAs
DESCRIPTION:The AYA-RISE Intervention: Risk Information and Screening Education for Adolescents and Young Adults with Cancer Risk\nDr. Mack will share initial results from the AYA-RISE intervention trial\, a groundbreaking study designed to improve how adolescents and young adults (AYAs) with cancer risk syndromes\, such as Li-Fraumeni syndrome\, receive and process critical cancer risk information. By combining chatbot technology and online portals\, this program aims to strengthen communication\, decision-making\, and family support for those facing genetic cancer risks. \nWatch the Recording>>\n\n 
URL:https://www.lfsassociation.org/event/webinar-aya-rise-cancer-risk-communication-for-ayas/
LOCATION:Virtual
CATEGORIES:Webinar
ORGANIZER;CN="LFS Association":MAILTO:info@lfsassociation.org
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DTSTART;VALUE=DATE:20250815
DTEND;VALUE=DATE:20250818
DTSTAMP:20260404T200031
CREATED:20250710T211300Z
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UID:13289-1755216000-1755475199@www.lfsassociation.org
SUMMARY:2025 LFSA Youth Workshop – Boston
DESCRIPTION:Empowering the Next Generation:\nThe 2025 Youth Workshop is taking place in Boston\, MA\, in partnership with Boston Children’s Hospital and Dana-Farber Cancer Institute\, this transformative weekend offers peer connection\, educational resources\, and empowering experiences to youth and young adults living with Li-Fraumeni syndrome (LFS). \nWelcoming LFS youth & young adults ages 13-25. \nClick here to connect with LFSA and learn more.
URL:https://www.lfsassociation.org/event/2025-lfsa-youth-workshop-boston/
LOCATION:Sheraton Boston\, 39 Dalton St\, Boston\, MA\, 02199\, United States
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DTSTART;TZID=America/New_York:20250804T090000
DTEND;TZID=America/New_York:20250804T100000
DTSTAMP:20260404T200031
CREATED:20250730T174022Z
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UID:13301-1754298000-1754301600@www.lfsassociation.org
SUMMARY:Webinar: Li-Fraumeni Syndrome: Genotype-Phenotype Correlations
DESCRIPTION:Explore Genotype-Phenotype Correlations in LFS with Dr. Christian Kratz\nWe’re thrilled to invite you to a special Zoom webinar with internationally recognized researcher Dr. Christian Kratz\, whose work at Hannover Medical School is advancing our understanding of genetic cancer risk in children and families. \nDr. Kratz will share insights into how specific TP53 mutations relate to clinical outcomes—information that is increasingly shaping risk assessment and patient care. \nThis webinar is ideal for families\, researchers\, and clinicians interested in the latest LFS developments. \n  \nWatch the Recording>>\n  \nLearn more about Dr. Kratz’s outlook for the future of LFS research.\n
URL:https://www.lfsassociation.org/event/webinar-li-fraumeni-syndrome-genotype-phenotype-correlations/
LOCATION:Virtual
CATEGORIES:Webinar
ORGANIZER;CN="LFS Association":MAILTO:info@lfsassociation.org
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DTSTART;TZID=America/New_York:20250729T160000
DTEND;TZID=America/New_York:20250729T170000
DTSTAMP:20260404T200031
CREATED:20250710T202525Z
LAST-MODIFIED:20250804T183552Z
UID:13281-1753804800-1753808400@www.lfsassociation.org
SUMMARY:Webinar: Understanding ‘scanxiety’ among individuals with LFS undergoing periodic cancer screening
DESCRIPTION:Rowan Forbes-Shepherd\, Ph.D. \nFeeling anxious before a cancer scan? You’re not alone. \nJoin the LFS Association for an important conversation on scanxiety in the LFS community\, presented by Rowan Forbes-Shepherd\, Ph.D.\, National Cancer Institute. \nMany people with rare inherited cancer conditions like Li-Fraumeni syndrome (LFS) experience what’s known as scanxiety—the stress or worry that comes before\, during\, or after cancer screening. LFS brings a lifelong risk of multiple cancers\, so regular\, whole-body scans are a critical part of staying healthy. But the emotional toll is real—and not well understood. \nOur study at the NCI takes a closer look at scanxiety in the LFS community: how common it is\, how it affects people\, and what factors may make it better or worse. Join us to learn more and share your experience. \nWatch the recording>>\n  \nWatch the video below to learn more about Rowan’s research at the NCI!
URL:https://www.lfsassociation.org/event/webinar-understanding-scanxiety/
LOCATION:Virtual
CATEGORIES:Webinar
ORGANIZER;CN="LFS Association":MAILTO:info@lfsassociation.org
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