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X-WR-CALNAME:LFS Association
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X-WR-CALDESC:Events for LFS Association
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DTSTART;TZID=America/New_York:20261002T080000
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DTSTAMP:20260821T185924Z
CREATED:20260109T225637Z
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UID:13485-1790928000-1791205200@www.lfsassociation.org
SUMMARY:REACH26
DESCRIPTION:8th International LFS Association Symposium\nCo-hosted by MD Anderson Cancer Center in collaboration with the LiFE Consortium\nOur 8th International Li-Fraumeni Syndrome Association Symposium will be a hybrid event – both in-person and virtual – bringing together scientists\, doctors\, geneticists\, and LFS families to make meaningful connections across borders. \nRegister Today!\nBook your stay at LFSA’s group rate at the Blossom Hotel. Meeting venue is a short walk from the hotel. \n\n\nCalling all researchers\, clinicians\, and advocates!\nYou are invited to submit your abstract for the REACH26 poster sessions to share your work and insights that will drive progress and spur ideas and breakthroughs. \nDEADLINE FOR SUBMISSION: September 14 \nAbstracts should be structured and limited to 300 words. Contact Tom Weiss and Jenn Perry with your questions. \nPoster specifications: Final posters should be formatted to 36 × 48 inches in portrait (vertical) orientation. \nSubmit Your Abstract
URL:https://www.lfsassociation.org/event/8th-international-lfs-association-symposium/
LOCATION:MD Anderson Cancer Center\, Houston\, TX\, 77030\, United States
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260914T080000
DTEND;TZID=America/New_York:20260914T170000
DTSTAMP:20260126T222747Z
CREATED:20260126T222340Z
LAST-MODIFIED:20260126T222747Z
UID:13503-1789372800-1789405200@www.lfsassociation.org
SUMMARY:Hunt Fore A Cure Golf Classic
DESCRIPTION:Monday\, September 14\, 2026\nMakefield Highlands Country Club\nYardley\, PA\nTee up for a day that drives real impact. The Hunt Fore a Cure Golf Classic raises vital funds for families living with Li-Fraumeni syndrome (LFS)\, a condition that causes a predisposition to cancer affecting both children and adults. The Li-Fraumeni Syndrome\nAssociation (LFSA) provides resources\, advocacy\, and community\, while bringing together researchers and clinicians to advance research and improve care for those affected by LFS. \nHunt Fore a Cure honors Cody Lesko\, whose courageous battle with adrenal cortical carcinoma inspires his family’s dedication to raising awareness and supporting LFSA’s mission. \nLearn More>>
URL:https://www.lfsassociation.org/event/hunt-fore-a-cure-golf-classic/
LOCATION:Makefield Highlands Country Club\, 1418 Woodside Rd\, Yardley\, PA\, 19067\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.lfsassociation.org/wp-content/uploads/2026/01/hunt-fore-a-cure-course.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260601T080000
DTEND;TZID=America/New_York:20260831T170000
DTSTAMP:20260722T193817Z
CREATED:20260722T193817Z
LAST-MODIFIED:20260722T193817Z
UID:13886-1780300800-1788195600@www.lfsassociation.org
SUMMARY:Climb for a Cure
DESCRIPTION:Stepping Up for a World Without Inherited Cancer\nJoin the Li-Fraumeni Syndrome Association (LFSA) today and throughout the summer as we step out and Climb for a Cure for LFS. Across the globe\, LFSA teams will hike\, walk\, run\, and ride to raise awareness of Li-Fraumeni syndrome\, support LFS families\, and fund the future. \nThis year\, proceeds will support the upcoming 8th International LFS Association Symposium\, taking place October 2–5\, hosted by MD Anderson in partnership with the LiFE Consortium. This global gathering brings together patients\, families\, and experts to share knowledge\, advance research\, and strengthen the LFS community. \nJoin our Climb for a Cure for LFS!\nStart your own event and fundraise as a team or individually – or join a Climb for a Cure event near you. If you can’t attend\, consider supporting a participating team or donating directly to LFSA. \nNeed help getting started?\nIf you’re new to fundraising or looking to take your efforts to the next level\, we’re here for you. From setting goals and sharing your story to engaging donors and promoting your climb\, our team is happy to provide tips\, tools\, and ideas to help make your fundraiser a success. Click here to email us for support – we’d love to help you get started. \nShow your support! >>
URL:https://www.lfsassociation.org/event/climb-for-a-cure/
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ORGANIZER;CN="LFS Association":MAILTO:info@lfsassociation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260521T110000
DTEND;TZID=America/New_York:20260521T120000
DTSTAMP:20260522T193620Z
CREATED:20260519T170122Z
LAST-MODIFIED:20260522T193620Z
UID:13675-1779361200-1779364800@www.lfsassociation.org
SUMMARY:Multidisciplinary Approaches to Li-Fraumeni Syndrome Webinar
DESCRIPTION:Multidisciplinary Approaches to Li-Fraumeni Syndrome Webinar\n \nDr. Payal Khincha of the National Cancer Institute (NIH) and the LFSA provides a concise overview of multidisciplinary care in Li-Fraumeni syndrome\, including insights into cancer screening effectiveness and new research on how treatments may impact the risk of subsequent cancers. \nWatch The Recording
URL:https://www.lfsassociation.org/event/multidisciplinary-approaches-to-lfs/
LOCATION:Virtual
CATEGORIES:Webinar
ORGANIZER;CN="LFS Association":MAILTO:info@lfsassociation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260512T110000
DTEND;TZID=America/New_York:20260512T120000
DTSTAMP:20260513T225755Z
CREATED:20260507T153232Z
LAST-MODIFIED:20260513T225755Z
UID:13661-1778583600-1778587200@www.lfsassociation.org
SUMMARY:Explore Essential Resources for LFS Families and Providers
DESCRIPTION:Watch the Explore Essential Resources for LFS Families and Providers Webinar\n\n \nPresented by LFSA Genetic Counselor Advisory Group Co-Chair Megan Frone and LFSA President Jenn Perry\, this session offers a clear\, user-friendly tour of essential resources for families and healthcare providers navigating LFS. \nWatch the recording!
URL:https://www.lfsassociation.org/event/essential-resources-for-lfs-families-and-providers/
LOCATION:Virtual
CATEGORIES:Webinar
ORGANIZER;CN="LFS Association":MAILTO:info@lfsassociation.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260424T070000
DTEND;TZID=America/New_York:20260425T114000
DTSTAMP:20260228T002042Z
CREATED:20260228T002042Z
LAST-MODIFIED:20260228T002042Z
UID:13583-1777014000-1777117200@www.lfsassociation.org
SUMMARY:9th Annual Hereditary Cancer Symposium
DESCRIPTION:Target Audience\nSpecialties – Adult Cardiac Anesthesiology\, Cardiovascular Disease\, Clinical Genetics and Genomics (MD)\, Colon and Rectal Surgery\, Complex Family Planning\, Congenital Cardiac Surgery\, Dermatology\, Gastroenterology\, Gynecologic Oncology\, Hematology\, Laboratory Genetics and Genomics\, Medical Genetics and Genomics\, Medical Oncology\, Molecular Genetic Pathology\, Nephrology\, Obstetrics and Gynecology\, Pathology\, Pathology – Clinical\, Pediatric Dermatology\, Pediatric Endocrinology\, Pediatric Gastroenterology\, Pediatric Hematology-Oncology\, Pediatric Nephrology\, Pediatric Surgery\, Pediatrics\, Preventive Medicine\, Public Health and General Preventive Medicine\, Reproductive Endocrinology and Infertility\, Thoracic Surgery\, Urology\nProfessions – Genetic Counselor\, Geneticist\, Nurse – APRN\, Nurse – LVN\, Nurse – RN\, Physician (MD or DO)\, Physician Associate\, Social Worker\, Student or Trainee\n\nCredits\nAMA PRA Category 1 Credits™ (9.50 hours)\, ANCC – Nursing Contact Hour(s) (9.50 hours)\, Medical Ethics/Professional Responsibility (1.00 hours)\, Non-Physician Attendance (9.50 hours) \n\nOverview\nThe symposium is designed for interprofessional healthcare providers and focuses on defining the knowledge and skills needed to recognize and manage hereditary cancers to support optimal patient care. Attendees will gain a deeper understanding of hereditary cancer predispositions to enhance genetic counseling practices\, improve the appropriateness of genetic referrals\, and facilitate the integration of precision medicine options into clinical care.\n\nObjectives\nAt the conclusion of this activity\, learners will be able to:\n\nExplain the foundational principles and clinical practices involved in genetic cancer risk assessment\nDescribe the impact of hereditary cancer on patients’ lives.\nRecognize patients who may benefit from personalized cancer therapy and evaluate appropriate timing for genetic testing referral.\nDevelop and apply effective management approaches for patients with inherited susceptibilities to cancer.\nAnalyze how genetic services are integrated into precision medicine practices.\n\nRegistration\nA Hybrid Conference\nThe 9th Annual Hereditary Cancer Symposium will be held as a hybrid conference. The conference in-person registration will be held at the Duncan Building (CPB) Conference Center\, Floor 8 located at 1155 Pressler Street\, Houston\, Texas 77030.  Registration and Continental breakfast opens at 7:30 AM and the Welcome and Introduction will begin at 8:30 AM on Friday\, April 24\, 2026 and will adjourn at 11:40 AM on Saturday\, April 25\, 2026.  The Zoom information and all other necessary links will be emailed out the week of the conference. \nReception\nThe welcome reception is scheduled for Friday\, April 24\, 2026 at 5:00 PM immediately after the conference adjourns. Hors d’oeuvres and beer/wine bar will be served.
URL:https://www.lfsassociation.org/event/9th-annual-hereditary-cancer-symposium/
LOCATION:MD Anderson – Duncan Building\, Houston\, TX\, 1155 Pressler St\, Houston\, TX\, 77030\, United States
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250925T100000
DTEND;TZID=America/New_York:20250925T110000
DTSTAMP:20250926T195921Z
CREATED:20250919T141714Z
LAST-MODIFIED:20250926T195921Z
UID:13381-1758794400-1758798000@www.lfsassociation.org
SUMMARY:AYA-RISE Webinar: Cancer Risk Communication for AYAs
DESCRIPTION:The AYA-RISE Intervention: Risk Information and Screening Education for Adolescents and Young Adults with Cancer Risk\nDr. Mack will share initial results from the AYA-RISE intervention trial\, a groundbreaking study designed to improve how adolescents and young adults (AYAs) with cancer risk syndromes\, such as Li-Fraumeni syndrome\, receive and process critical cancer risk information. By combining chatbot technology and online portals\, this program aims to strengthen communication\, decision-making\, and family support for those facing genetic cancer risks. \nWatch the Recording>>\n\n 
URL:https://www.lfsassociation.org/event/webinar-aya-rise-cancer-risk-communication-for-ayas/
LOCATION:Virtual
CATEGORIES:Webinar
ORGANIZER;CN="LFS Association":MAILTO:info@lfsassociation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250815
DTEND;VALUE=DATE:20250818
DTSTAMP:20250710T211413Z
CREATED:20250710T211300Z
LAST-MODIFIED:20250710T211413Z
UID:13289-1755216000-1755475199@www.lfsassociation.org
SUMMARY:2025 LFSA Youth Workshop – Boston
DESCRIPTION:Empowering the Next Generation:\nThe 2025 Youth Workshop is taking place in Boston\, MA\, in partnership with Boston Children’s Hospital and Dana-Farber Cancer Institute\, this transformative weekend offers peer connection\, educational resources\, and empowering experiences to youth and young adults living with Li-Fraumeni syndrome (LFS). \nWelcoming LFS youth & young adults ages 13-25. \nClick here to connect with LFSA and learn more.
URL:https://www.lfsassociation.org/event/2025-lfsa-youth-workshop-boston/
LOCATION:Sheraton Boston\, 39 Dalton St\, Boston\, MA\, 02199\, United States
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250804T090000
DTEND;TZID=America/New_York:20250804T100000
DTSTAMP:20250919T141109Z
CREATED:20250730T174022Z
LAST-MODIFIED:20250919T141109Z
UID:13301-1754298000-1754301600@www.lfsassociation.org
SUMMARY:Webinar: Li-Fraumeni Syndrome: Genotype-Phenotype Correlations
DESCRIPTION:Explore Genotype-Phenotype Correlations in LFS with Dr. Christian Kratz\nWe’re thrilled to invite you to a special Zoom webinar with internationally recognized researcher Dr. Christian Kratz\, whose work at Hannover Medical School is advancing our understanding of genetic cancer risk in children and families. \nDr. Kratz will share insights into how specific TP53 mutations relate to clinical outcomes—information that is increasingly shaping risk assessment and patient care. \nThis webinar is ideal for families\, researchers\, and clinicians interested in the latest LFS developments. \n  \nWatch the Recording>>\n  \nLearn more about Dr. Kratz’s outlook for the future of LFS research.\n
URL:https://www.lfsassociation.org/event/webinar-li-fraumeni-syndrome-genotype-phenotype-correlations/
LOCATION:Virtual
CATEGORIES:Webinar
ORGANIZER;CN="LFS Association":MAILTO:info@lfsassociation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250729T160000
DTEND;TZID=America/New_York:20250729T170000
DTSTAMP:20250804T183552Z
CREATED:20250710T202525Z
LAST-MODIFIED:20250804T183552Z
UID:13281-1753804800-1753808400@www.lfsassociation.org
SUMMARY:Webinar: Understanding ‘scanxiety’ among individuals with LFS undergoing periodic cancer screening
DESCRIPTION:Rowan Forbes-Shepherd\, Ph.D. \nFeeling anxious before a cancer scan? You’re not alone. \nJoin the LFS Association for an important conversation on scanxiety in the LFS community\, presented by Rowan Forbes-Shepherd\, Ph.D.\, National Cancer Institute. \nMany people with rare inherited cancer conditions like Li-Fraumeni syndrome (LFS) experience what’s known as scanxiety—the stress or worry that comes before\, during\, or after cancer screening. LFS brings a lifelong risk of multiple cancers\, so regular\, whole-body scans are a critical part of staying healthy. But the emotional toll is real—and not well understood. \nOur study at the NCI takes a closer look at scanxiety in the LFS community: how common it is\, how it affects people\, and what factors may make it better or worse. Join us to learn more and share your experience. \nWatch the recording>>\n  \nWatch the video below to learn more about Rowan’s research at the NCI!
URL:https://www.lfsassociation.org/event/webinar-understanding-scanxiety/
LOCATION:Virtual
CATEGORIES:Webinar
ORGANIZER;CN="LFS Association":MAILTO:info@lfsassociation.org
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