Li-Fraumeni Syndrome Cancer Support - Li-Fraumeni Syndrome Association
Our mission is to bring Li-Fraumeni families, Li-Fraumeni researchers, and Li-Fraumeni doctors together, all of whom are interested in the understanding of LFS, to identify the best LFS cancer treatments, LFS screening protocols, advocacy & awareness, and hopefully some day a cure for Li-Fraumeni Syndrome.
We here at Li-Fraumeni Syndrome Association are people like you; we wonder how one family could be plagued with so many cancers, multiple cancers and childhood cancers. We have seen generation after generation affected by cancer, but only recently have we learned why. Through LFSA, we hope to educate and raise awareness of this rare condition. Those with LFS have similar stories, but despite the rarity of this disease, the people who face it have a physical and a spiritual strength that is truly unique.
Our cancer support initiatives at LFSA include providing:
- LFS patient cancer support services, such as cancer support groups and childhood cancer support
- An open online forum, a way to connect with others living with LFS or with a family history of cancer
- Conference and webinar hosting for families to meet, support each other and share the most current LFS information in a personal setting
- LFS research information
- Li-Fraumeni medical resources
- Listings of Li-Fraumeni hospitals and treatment facilities
- Information about Li-Fraumeni clinical trials
- Research support that will directly impact the screenings and treatments of those living with LFS