Noelle’s LFS Fight Club - Li-Fraumeni Syndrome Association

Noelle Johnson and her team returned to race the Boulder Sunset Triathlon on Saturday, August 27, 2016 in Boulder, CO. They added team members and joined forces with the Li-Fraumeni Syndrome Association to raise worldwide awareness and funds for Li-Fraumeni Syndrome (LFS), a rare inherited genetic cancer disorder that greatly increases the risk of developing cancer during a lifetime.

 Through genetic testing, Noelle found out she had LFS in 2013. She survived her first sarcoma cancer at the age of 21. Her treatment included surgery, radiation and chemotherapy. She’s since had ten surgeries in her fight to remain cancer free, including a double mastectomy and full hysterectomy. Today, at 39, Noelle raced in her second sprint triathlon to support LFS research and encourage genetic testing for the TP53 gene mutation.

Noelle and Greg Johnson, Heather Henstock, and Erin Livingstone competed in the Boulder Sunset Triathlon sprint distance, which is a 750m swim, 17.3mi bike, and 5K run. John Henstock raced in the Olympic distance, which is a 1500m swim, 26.4mi bike, 10K run. Geoff Livingstone raced in the 5K run with seven boys…his sons Lucas, Sam and Micah, and the Johnson brothers Elijah, Sam, Isaiah and Simon!

Last year’s team raised $2,600 in its first event. They want to beat that in 2016! All donations go directly to the Li-Fraumeni Syndrome Association, which supports LFS cancer research and provides support services for individuals and families with Li-Fraumeni Syndrome.