Noelle’s LFS Fight Club 2018 - Li-Fraumeni Syndrome Association
Triathlon – July 31, 2018
Windsor, CO
It is year number 4 for Noelle’s LFS Fight Club! Noelle Johnson and her team have returned to swim, bike, and run a sprint triathlon to raise money for the Li-Fraumeni Syndrome Association. Li-Fraumeni syndrome (LFS) is a rare inherited genetic cancer disorder that greatly increases the risk of developing cancer during a lifetime. Noelle survived her first sarcoma cancer at the age of 21. At the time, her treatment included surgery, radiation and chemotherapy. Through genetic testing years later in 2013, Noelle uncovered the mutation of her TP53 gene, which is LFS. She’s since had a dozen surgeries, including a double mastectomy and full hysterectomy, and undergoes full-body scans and blood work in her fight to remain cancer free. Today, at 41, Noelle is racing in her fourth sprint triathlon to support LFS research and encourage genetic testing for the TP53 gene mutation.
Noelle’s LFS Fight Club has raised more than $7,000 for the Li-Fraumeni Syndrome Association, and we’re not done yet! Please join Noelle’s friends and family to continue the fight against LFS with a donation. All donations go directly to the Li-Fraumeni Syndrome Association, which supports LFS cancer research and provides support services for individuals and families with Li-Fraumeni syndrome.
Even if you can’t donate, please share this website to help raise awareness about LFS. We believe it is not as rare as you think. LFS scientific research has only just begun. Identification, knowledge and preemptive action are the best ways to fight LFS and other genetically-linked cancers.
