We are families, like you who have been devastated by the effects of Li-Fraumeni syndrome, a hereditary cancer predisposition syndrome. Our hopes are to educate, raise awareness, and find better screening programs and treatments for LFS. By forming relationships with and supporting the variety of researchers and medical staff who can help achieve this, we wish to help provide a better understanding of a complex syndrome to those who need it. We welcome communication with all professionals, researchers, scientists, doctors, patients and families in the hopes that the bridges formed by these communities will lead to an end of the devastating effects of Li-Fraumeni and Li-Fraumeni-Like syndromes.
In November 2010, with the support of the National Cancer Institute in Washington D.C. and Li-Fraumeni world medical leaders, we met at the Li-Fraumeni syndrome conference for the first time. In December 2010, we formed the LFS Association and our Board of Directors.
It is with heartfelt appreciation that we acknowledge Sabre Creative Imageryfor donating this website, which is our first ever communication tool linking our worldwide LFS community together. Without Sabre Creative Imagery, none of this would have been possible – Thank you!