I discovered the syndrome in 2018 after breast cancer. My breast surgeon, after reviewing my medical history, suggested I see a geneticist, and that’s how I confirmed it. The first cancer was in 2003 when I was 16 years old: an osteosarcoma in the left iliac bone, which was removed through amputation. 2010: sarcoma in the left upper extremity. 2011: Schwannoma in the left thigh. 2015: Liposarcoma in the left thigh, which led to the amputation of the entire left lower extremity. 2018: breast cancer, bilateral mastectomy. 2018: lung cancer. 2022: lung cancer.
Today, I continue to undergo regular check-ups and examinations. My daughter also has the syndrome, and at the age of 7, she had a sarcoma in her tibia and had part of her left leg amputated. It’s not easy and it never will be, but you choose whether to live crying or fighting. With God in my heart, I always win the battles, because giving up is the easiest path. Fight and live life
