We are a community of Li‑Fraumeni syndrome families, researchers and care providers. We are the building blocks of a future without LFS.
LFS Association provides a wide range of information, advocacy, and vital resources for individuals and families with Li-Fraumeni syndrome. We are at the helm of a consortium of researchers and medical providers to advance research and promote optimal care for the LFS community.
LFS RESOURCES & SUPPORT
FAMILY SUPPORT
We are the building blocks of a future without LFS. Together we will bridge the gap between patients and professionals who have the same goal.
GLOBAL LFS RESEARCH NETWORK
MEDICAL & SCIENTIFIC RESOURCES
The LFSA has 10 international chapters headed by medical professionals, patients and advocates, as well as a global partnership of a consortium of care providers.
Genetics matter. Know your family, know your genes.
LFS predisposes carriers to a diverse range of childhood and adult-onset cancers – some rare, often early onset. Most families with LFS have an inherited pathogenic variant in the TP53 gene – a tumor suppressor gene. Malfunctioning TP53 are involved with most all cancers in the general population.
Always at the Heart of What We Do
As families who have been affected by LFS, we all know the significant challenges we have faced and overcome. At the LFS Association we want to share hope, resilience and compassion to all of our LFS families. We are the Faces of LFS…we are LFS Strong.
Honoring & Remembering Our LFS Family.
Forever in Our Hearts.
Latest News
Optimizing shared decision-making for risk-reducing mastectomy in women with Li–Fraumeni syndrome using patient-reported outcome measures
Li-Fraumeni syndrome (LFS) researchers in Brazil studied factors in determining
Attention Young Adults between 18-29 living in the US of A!
Would you like to participate in a research study at
LFSA Co-Founder Debbie Soprano Honored by Boston Children’s Hospital
The Li-Fraumeni Syndrome Association (LFSA) is proud to announce
Alliances
