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Urgent Cause
WHAT IS LFS?
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Li-Fraumeni Syndrome is a rare inherited genetic cancer disorder…
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There are many ways to get involved! Join the LFS Community!
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Helping young people with LFS live their lives to the fullest and stay connected with one another. Learn more.
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Latest News
08Feb
New Study for LFS Children’s Book – Join Today!
Dear LFS Family, We need your input on a new children’s book about Li-Fraumeni syndrome! Providers, please forward this opportunity along to your families ...
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26Oct
Join the LiFT UP study!
To all our LFSA members, We are pleased to share an international study with you called LiFT UP (Li-Fraumeni & TP53: Understanding & Progress). Anyone ...
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19Oct
NIH/NCI COVID-19 Impact with LFS Study
Do you want to know how COVID-19 impacts the health of people with Li-Fraumeni syndrome? Help doctors find out by taking a 30-minute survey. Learn ...
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