The Li-Fraumeni Syndrome Association (LFSA) is pleased to announce that applications are now open for the first annual Lesko-Fleming Empowerment Grant supporting adolescents and young adults with LFS. Through the tremendous generosity of the Lesko and Fleming families, this newly established annual grant program honoring the meaningful life and enduring memory of Cody Lesko
July 13, 2026 print edition The New York Times July 9, 2026 By Trip Gabriel Considered the founder of molecular epidemiology, he worked with Frederick P. Li to identify a hereditary disorder that increased the risk of developing cancer at a young age.Dr. Joseph F. Fraumeni Jr., who helped discover one of
Diagnosing Li-Fraumeni syndrome soon after a patient's first cancer can reduce their overall cancer burden with an improved, personalized plan. Faster identification enables earlier screening, proactive prevention, and better-informed treatment choices that minimize the risk of therapy-induced secondary cancers in women. Read more on the research published in Clinical Breast Cancer (June 2026) by our
Genetic testing is not always a one and done process: the classification of a variant may change over time, technologies improve and better testing may become available; and guidelines and recommendations for testing and management change as we learn new information. This case in “Genetic Testing Challenges in Oncology" highlights some of these issues. The
Through the tremendous generosity of the Lesko and Fleming families, a newly established annual grant program will provide support for two youth personally impacted by Li-Fraumeni syndrome. Honoring the meaningful life and enduring memory of Cody Lesko, the empowerment grants will support adolescents and young adults to offset costs of enriching wellness, mental health
Our friends at MD Anderson have published the results from their prospective study validating a new, user-friendly method in determining if genetic testing should be pursued, referred to as LFSPRO. Developed to assist genetic counselors, LFSPRO is a statistical tool that analyzes a patient's full family history to estimate the likelihood of a TP53 mutation.
Families of children with Li-Fraumeni syndrome are invited to join a dedicated day of education, connection, and support at Children’s National Hospital. This Family Education Day will feature presentations from physicians, researchers, and care team members, along with updates on the latest research, clinical care, and future directions in LFS.Attendees will also have the opportunity
The Li-Fraumeni Syndrome Association (LFSA) is honored to announce the establishment of the Katherine M. Howley Endowment Fund for Li-Fraumeni Syndrome Research. This generous gift will allow the LFSA to award biennial research grants of up to $50,000 to the best and brightest minds in science who are working to discover and implement accessible
The use of radiation is a challenge for Li-Fraumeni syndrome patients in regard to the increased risk of developing secondary, radiation-induced cancers. However, advances in treatment protocols with radiation are rendering it a more viable option as deemed necessary in treating certain cancers. This paper by researchers in Morocco reviews other papers on the topic
The American Association of Cancer Research (AACR) has published a useful article on the financial impact of young adults who have been diagnosed with cancer in their Cancer Today magazine. The article provides financial resources (to include Dollar For, etc.) and practical tips for navigating the burden of medical costs (such as requesting payment plans with
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