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Monthly Archives: May 2024


I discovered Li-Fraumeni syndrome one week before quadrant surgery for breast cancer. I found out about the cancer in April 2023, underwent chemotherapy, and reduced it to the point where only the quadrant would be removed. However, after genetic testing, everything changed. Today, I'm undergoing immunotherapy, and I believe it will continue until October. I

By |2024-07-11T15:16:32-04:00May 16th, 2024|LFS Family Stories|0 Comments


My late son, Raphael Lee, was first diagnosed with rhabdomyosarcoma on his left forearm in 2008 when he was 8 months old. He underwent one round of chemotherapy before surgery to shrink the tumour. After surgery, he had to go for radiotherapy and another round of chemotherapy to eliminate any remaining tumour cells. In

By |2024-07-11T15:16:32-04:00May 9th, 2024|LFS Family Stories|Comments Off on William


In December 2022, my mother was diagnosed with retroperitoneal leiomyosarcoma after experiencing severe abdominal pain. This led to the discovery of a hereditary cancer syndrome in our family. My cousin had been diagnosed with the syndrome in 2018, thought to be inherited from her mother's side. However, it was a shock to find out

By |2024-07-11T15:16:33-04:00May 9th, 2024|LFS Family Stories|Comments Off on Camila

A Fatal Inheritance – How a Family Misfortune Revealed a Deadly Medical Mystery

Larry Ingrassia’s, A Fatal Inheritance, is the most comprehensive biography of Li-Fraumeni syndrome for the lay reader to date. Though this book reads like a riveting medical mystery, it is also an informative resource for medical students and providers, genetic counselors, and families riddled with early onset, rare, and/or multiple cancers, and even the skeptics

By |2024-07-11T15:16:33-04:00May 8th, 2024|Books, LFS News|0 Comments
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