LFSA- Sweden Chapter serves individuals from Sweden to spread awareness about cancerous tumors associated with Li-Fraumeni syndrome, in order for them to make the best healthcare decisions.
LFSA Sweden is a patient organization for individuals and families affected by Li-Fraumeni syndrome (LFS) and/or germline TP53 mutations.
The purpose of the association is to:
- Support and inform members and their families
- Create meeting spaces—both digital and physical—for patients and their families
- Raise awareness of the syndrome within society and healthcare
- Promote and support research into germline TP53 mutations and Li-Fraumeni syndrome
- Improve the quality of life for those living with the diagnosis
- Advocate for equitable and individualized care for its members
- Collaborate with the international LFSA and other patient organizations
Anna Vallgren
My name is Anna Vallgren, and I am a representative for the LFSA Sweden patient association.
As the family relative to one living with LFS, this cause is deeply personal to me. I am highly dedicated to supporting individuals and families navigating this diagnosis and I firmly believe that the advocacy, awareness and research support our association provides is absolutely vital. The goal of our organization is to ensure no one has to face this journey alone and that our members receive the equitable, individualized support they deserve.
Svetlana Lagercrantz
Contact person for the Swedish TP53 study cohort (SWEP53) is Svetlana Lagercrantz (svetlana.lagercrantz@ki.se).
To contact us, please complete the form below or email us at: lfsasweden@lfsassociation.org
Contact the LFSA Sweden Chapter
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