Rowan Forbes-Shepherd, Ph.D. Feeling anxious before a cancer scan? You’re not alone. Join the LFS Association for an important conversation on scanxiety in the LFS community, presented by Rowan Forbes-Shepherd, Ph.D., National Cancer Institute. Many people with rare inherited cancer conditions like Li-Fraumeni syndrome (LFS) experience what’s known as scanxiety—the stress or worry
Empowering the Next Generation: The 2025 Youth Workshop is taking place in Boston, MA, in partnership with Boston Children’s Hospital and Dana-Farber Cancer Institute, this transformative weekend offers peer connection, educational resources, and empowering experiences to youth and young adults living with Li-Fraumeni syndrome (LFS). Welcoming LFS youth & young adults ages 13-25. Click here
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