Spain Chapter

LFSA – Spain Chapter treats and manages the care individuals from Spain with LFS and spreads awareness about cancerous tumors associated with Li-Fraumeni syndrome, in order for those with LFS to make the best healthcare decisions.

La sección española de la LFS Association conecta, apoya y acompaña a las personas y familias afectadas por el síndrome de Li-Fraumeni en todo el país. A través de la educación, la defensa de derechos y la participación comunitaria, trabajaremos para concienciar sobre el síndrome de Li-Fraumeni, ofrecer recursos en español y crear una red de apoyo para pacientes, cuidadores y profesionales de la salud. Como parte de la LFS Association, nuestra sección se dedica a impulsar la investigación, fomentar la colaboración y empoderar a las familias en España para afrontar juntas el síndrome de Li-Fraumeni.

The Spain Chapter of the LFS Association connects, supports, and cares for individuals and families affected by Li-Fraumeni syndrome across the country. Through education, advocacy, and community engagement, we will work to raise awareness of LFS, provide resources in Spanish, and build a network of support for patients, caregivers, and healthcare professionals. As part of the LFS Association, our chapter is dedicated to advancing research, fostering collaboration, and empowering families in Spain to face LFS together.

We welcome our medical professionals in Spain who are offer their assistance and guidance in navigating LFS:

Clínica Universidad de Navarra

Pamplona Campus:
Av. de Pío XII, 36, 31008
Pamplona, Navarra, Spain
(Phone: +34 948 255 400)

Madrid Campus:
Calle Marquesado de Santa Marta, 1, 28027
Madrid, Spain
(Phone: +34 913 531 920)

Overview of Referral Professionals
• Dr. Ana Patiño
Role: Director of the Genomic Medicine Unit
Focus: Clinical genetics, genetic counseling, variant interpretation, and pediatric solid tumor research.

• Dr. Josepmaria Argemí
Role: Specialist in Internal Medicine and Consultant in Hepatology
Focus: Liver diseases, liver regeneration, alcohol-related hepatic conditions, and liver cancer immunotherapy.

• Dr. Alejandro Gallego
Medical Oncologist at the Cancer Center Clínica Universidad de Navarra
Focus: Gynecologic oncology, bone and soft tissue sarcomas, hereditary cancer.

For downloadable resources to help facilitate awareness and care, please reference our Family and Care Provider Toolkit. Currently, our Awareness Brochure is available in Spanish.