A Message from the LFSA President
Dear Friends of the Li-Fraumeni Syndrome Association,
I’m overjoyed at all that we have accomplished this year because of your support of the LFS Association. Whether you’ve donated money, given your time and expertise or organized your community on our behalf, you’re the reason we’ve achieved so much this year.
This Impact Report highlights the many ways your contributions are helping the LFSA set the standard of care and offer hope to families and individuals with Li-Fraumeni syndrome. Because of you, we’ve done some incredible things to support the LFS patient community and drive research toward a cure for LFS.
This year, we’ve driven research with a global reach. Your donations have resulted in our first ever research grant presented to Professor Arnold Levine for an LFS breast cancer study. The LFSA’s Scientific Advisory Board is in the process of announcing another grant currently, and more are planned for next year.
We’ve also added an LFS Association – Africa chapter, bringing our international chapter number to 11, covering six continents! Being more inclusive globally benefits all of us with LFS. We’re able to reach people that may otherwise have no support for LFS. And, we’re able to enhance LFS research efforts by sharing the knowledge base of international scientific, medical, and genetic perspectives.
We are building on all that we’ve accomplished this year to expand our impact next year. The best collaboration takes place in person, so we are a full green light on more face-to-face education, including our 6th International LFS Association Symposium and International Youth Conference. These will be in-person events with improved technology to allow more people to participate from around the world.
We plan to get up close and personal through more outreach and more in-person connection, so get ready to see MORE of us! As your association, we’ll continue to provide hope and resources for individuals and families with LFS and ultimately find a cure.
LFSA President, LFS patient, and LFS Mom