Hello, My name is Erika and my son has LFS. He was diagnosed with Acute Lymphoblastic Leukemia December 1, 2010. He went into remission on Dec. 29, 2010 and responded well to treatment. We now know because of a hypodiploid (related to LFS) he would need to have a transplant. Well he did, he had a dbl cord stem cell transplant on July 13, 2011. He has accepted the donor cells 100% and this July 13, he will be completing 2 years post transplant. He has a very active LFS immediate family history of cancer..his biological father, his grandfather, his 4 aunts, his 2 little cousins & 1 uncle have all passed due to malignant tumors caused by LFS. He has 3 cousins, 2 uncles and himself who have had and fought cancer caused by LFS. We recently made a trip to Houston where he had 2 MRIs done. One of the head and then a whole body. These are going to be a yearly check up. These tests are the newest to come out and only 10 or less hospitals offer these MRIs and Texas Childrens Houston has them. There has only been about 10 kids to have had these MRIs. We are also in a clinical study with MD Anderson where they will be taking a piece of skin from my son to study being that because he has had a transplant his blood will not be positive for LFS as it will show the donors blood cells.