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November 2019
2nd Annual LFSA Fall Gymnastics Invitational
The 2nd Annual LFSA Fall Invitational will be a fun-filled gymnastic competition and fundraiser to benefit our youth with Li-Fraumeni syndrome; a hereditary cancer predisposition syndrome. L2-L10 & Xcel Competitions Team Competition Special Drawing! November 9th & 10th, 2019 Chicopee Comprehensive High School 617 Montgomery St #1 Chicopee, MA
Find out more »September 2019
Noelle’s Fight Club 2019
Noelle’s LFS Fight Club is taking a hike for its fifth annual fundraiser to benefit the Li-Fraumeni Syndrome Association. Noelle Johnson and her team are climbing to the top of Horsetooth Mountain, the most iconic rock in Fort Collins, CO. The six-mile hike features a 1,600-ft. elevation gain and a challenging scramble to the summit. We’re hiking for the Johnson family and others like them with Li-Fraumeni syndrome (LFS), a rare inherited genetic cancer disorder that greatly increases the risk of…
Find out more »August 2019
Youth Workshop 2019 – Boston, MA
The LFS Association is now accepting registrants for our second Youth Workshop to be held August 23rd, 24th and 25th! Our inaugural pilot program, first held in 2017, was hosted at the Huntsman Cancer Institute and was a terrific experience for the 21 teens with LFS who traveled in from around the world! The friendships that developed, not only between the teens, but also amongst the parents, have proven to be treasured relationships since our first workshop. This year’s workshop…
Find out more »July 2019
6th Annual Mo Songs for Kerry
Mo Songs for Kerry 6th Annual Cancer Fundraiser! July 29, 2019 10am to 8pm Sayre, PA Our community event will feature a large craft show, music festival, BBQ, car was, corn hole tournament and games for the kids. Click here to learn more!
Find out more »June 2019
2019 “3v3” con dade in Acona, Italy
Next weekend, June 28, 29, & 30, in Ancona, Italy, is the third annual “3v3 con Dade,” a three-day basketball tournament in memory of Davide Pagani. Donations collected by his beloved mother and his friends will be forwarded to the LFS Association to benefit our Youth Program initiatives! Follow and support Davide’s friends and family on Facebook!
Find out more »2019 Cow Pie Contest
Help support our 2019 Youth Conference by entering for chance to win in our Cow Pie Contest! You do not have to be present at the event to participate. Click Here for Your Chance! June, 23, 2019 9:30 am – 2pm Westfield Riding Club 29 Fowler Road Westfield, MA Lawn Games • Pie Contest • Bring Your Own Picnic
Find out more »May 2019
Webinar – Talking to Kids About LFS
Please join us for the “Ask a Genetic Counselor” Webinar on Sunday, May 19th at 2pm! Topic: Talking to Kids About LFS Take advantage of this special opportunity to ask questions and get valuable information on talking with children about LFS from the LFS community's most trusted genetic counselors. Upon registering, you'll have the opportunity to submit your questions. The genetic counselor will address these questions first, at the beginning of the Q&A session. You will still have the opportunity…
Find out more »March 2019
2nd Annual David Philpott Memorial Bowling Tournament
Join us Saturday, March 16, 2019, 7:00 pm (Check-in by 5:30pm) Mardi Gras Lanes 4800 Madison Ave, Sacramento, CA 95841 $25 per person Includes: 3 “No Tap” Format Games, Pizza & Soda Live Music Featuring – The Culbacks
Find out more »February 2019
October 2018
Salute! Hartford 2018
Saturday, October 27, 2018 6pm - 10pm Join us for a special 1920s inspired Salute! to benefit Li-Fraumeni syndrome patients! The Li-Fraumeni Syndrome Association (LFSA) presents the 4th annual Salute! benefit dedicated to supporting the critical research required to raise awareness, provide support, and improve the health of patients. People diagnosed with Li-Fraumeni syndrome (LFS) live with cancer or a potential cancer diagnosis every day of their lives, often beginning in childhood and frequently with multiple occurrences. Your contribution…
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