The LFS Association is now accepting registrants for our second Youth Workshop to be held August 23rd, 24th and 25th! Our inaugural pilot program, first held in 2017, was hosted at the Huntsman Cancer Institute and was a terrific experience for the 21 teens with LFS who traveled in from around the world! The friendships that developed, not only between the teens, but also amongst the parents, have proven to be treasured relationships since our first workshop. This year’s workshop…
Mo Songs for Kerry 6th Annual Cancer Fundraiser! July 29, 2019 10am to 8pm Sayre, PA Our community event will feature a large craft show, music festival, BBQ, car was, corn hole tournament and games for the kids. Click here to learn more!
Next weekend, June 28, 29, & 30, in Ancona, Italy, is the third annual “3v3 con Dade,” a three-day basketball tournament in memory of Davide Pagani. Donations collected by his beloved mother and his friends will be forwarded to the LFS Association to benefit our Youth Program initiatives! Follow and support Davide’s friends and family on Facebook!
Help support our 2019 Youth Conference by entering for chance to win in our Cow Pie Contest! You do not have to be present at the event to participate. Click Here for Your Chance! June, 23, 2019 9:30 am – 2pm Westfield Riding Club 29 Fowler Road Westfield, MA Lawn Games • Pie Contest • Bring Your Own Picnic
Please join us for the “Ask a Genetic Counselor” Webinar on Sunday, May 19th at 2pm! Topic: Talking to Kids About LFS Take advantage of this special opportunity to ask questions and get valuable information on talking with children about LFS from the LFS community's most trusted genetic counselors. Upon registering, you'll have the opportunity to submit your questions. The genetic counselor will address these questions first, at the beginning of the Q&A session. You will still have the opportunity…
Join us Saturday, March 16, 2019, 7:00 pm (Check-in by 5:30pm) Mardi Gras Lanes 4800 Madison Ave, Sacramento, CA 95841 $25 per person Includes: 3 “No Tap” Format Games, Pizza & Soda Live Music Featuring – The Culbacks
The Society Room of Hartford, 31 Pratt Street Hartford,
06103United States+ Google Map
Saturday, October 27, 2018 6pm - 10pm Join us for a special 1920s inspired Salute! to benefit Li-Fraumeni syndrome patients! The Li-Fraumeni Syndrome Association (LFSA) presents the 4th annual Salute! benefit dedicated to supporting the critical research required to raise awareness, provide support, and improve the health of patients. People diagnosed with Li-Fraumeni syndrome (LFS) live with cancer or a potential cancer diagnosis every day of their lives, often beginning in childhood and frequently with multiple occurrences. Your contribution…
Reems Creek Golf Club, 36 Pink Fox Cove Rd Weaverville,
28787United States+ Google Map
Tee’d Off at LFS, a golf tournament to benefit LFSA and Kortne Waginger. It is with your help, that we can help raise money to support our friend Kortne during her journey with LFS and possible cancers. 10% of all proceeds will go to LFSA and 90% of all proceeds will go directly to Kortne’s continued care. Learn more here. Tournament Information: Entry fee includes green fees, cart rentals, driving range balls, lunch and banquet dinner with entertainment by the…
October 19, 2018 @ 6:00 pm - October 21, 2018 @ 6:00 pm
Chicopee Comprehensive High School, 617 Montgomery St # 1 Chicopee,
01020United States+ Google Map
Salute. Scale. Support. The LFSA Fall Invitational will be a fun-filled gymnastic competition and fundraiser to benefit our youth with Li-Fraumeni syndrome; a hereditary cancer predisposition syndrome. L2-L10 & Xcel Competitions, Team Competition, Special Drawing, Prizes & More! Come and show your support! ($10 Door Fee) October 19, 20 & 21 Chicopee Comprehensive High School 617 Montgomery St #1 Chicopee, MA $90 Registration. Register by email at email@example.com, or by mail at PO Box 294, Ashburnham, MA 01430…