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December 2020
LFSA Annual Appeal
There Are Many Ways You Can Support the LFSA this Holiday Season! The LFSA relies on your generosity and kindness to support our mission of a brighter future for those affected by LFS, and every little bit helps. You can do your part by making a donation, becoming a fundraiser, or designating LFS Association your charity through AmazonSmile. Your philanthropy is an investment in LFS research, educational and patient support programs. Make a Gift Give a gift by making a donation to the…
Find out more »Giving Tuesday 2020
There Are Many Ways You Can Support the LFSA this Holiday Season! The LFSA relies on your generosity and kindness to support our mission of a brighter future for those affected by LFS, and every little bit helps. You can do your part by making a donation, becoming a fundraiser, or designating LFS Association your charity through AmazonSmile. Your philanthropy is an investment in LFS research, educational and patient support programs. Make a Gift Give a gift, get a gift by making a…
Find out more »November 2020
The 3rd Annual LFSA Fall Gymnastics Invitational
The 3rd Annual LFSA Fall Gymnastics Invitational will be a fun-filled gymnastic competition and fundraiser to benefit our youth with Li-Fraumeni syndrome; a hereditary cancer predisposition syndrome. L1-L10 & Xcel Competitions Team Competition Special Drawing! November 14th & 15th, 2020 All American Gymnastic & Dance Academy 65 Post Office Park Wilbraham, MA 01095 (413) 596-0089 We are COVID-19 ready! All necessary steps will be taken to protect the health and safety of athletes, staff and spectators in accordance with…
Find out more »October 2020
5th International LFS Association Symposium
If you missed this event, you can still watch the recorded sessions! Download the Agenda! 5th International LFS Association Virtual Symposium October 3-4 & 10-11, 2020 Hosted by REACH LIVE, our 5th International Li-Fraumeni Syndrome Association Symposium, has been thoughtfully reformatted in response to the unprecedented challenge facing the LFS community and the world. Hosted by Dana-Farber Cancer Institute, REACH LIVE will be an interactive virtual experience enabling scientists, doctors, geneticists and LFS families to make meaningful connections.…
Find out more »September 2020
Youth Workshop 2020
Register Today for the LFSA Virtual Youth Workshop! Saturday, September 12, 2020 • 9:30am to 12:30pm EST: Morning Session, 13-18 Age Group • 1:00pm to 2:00pm EST: Combined Session , Both Age Groups • 2:00pm to 5:30pm EST: Afternoon Session, 19-25 Age Group Download the Agenda! Once registered for the Youth Workshop, we will send you an invite with the meeting details and access information prior to the event.
Find out more »June 2020
Live Webinar: Forging a Path Towards Resilience and Cultivating Greater Happiness
Forging a Path Towards Resilience and Cultivating Greater Happiness June 29th, 4-5pm EST Join us for a conversation surrounding the topic of resilience with author Gina Vild. Vild is the co-author of The Two Most Important Days – How to Find your Purpose and Live a Happier, Healthier Life and is currently writing her second book about resilience. As we navigate these times of uncertainty, resilience becomes an important factor in maintaining our sense of happiness and health. During the…
Find out more »February 2020
David Philpott Memorial Bowling Tournament
Join us Saturday, February 29, 2020, 6:00 pm (Check-in begins at 4:30pm) Mardi Gras Lanes 4800 Madison Ave, Sacramento, CA 95841 $25 per person Includes: 3 “No Tap” Format Games, Pizza & Soda Live Music Featuring – The Cutbacks Download Flyer
Find out more »November 2019
2nd Annual LFSA Fall Gymnastics Invitational
The 2nd Annual LFSA Fall Invitational will be a fun-filled gymnastic competition and fundraiser to benefit our youth with Li-Fraumeni syndrome; a hereditary cancer predisposition syndrome. L2-L10 & Xcel Competitions Team Competition Special Drawing! November 9th & 10th, 2019 Chicopee Comprehensive High School 617 Montgomery St #1 Chicopee, MA
Find out more »September 2019
Noelle’s Fight Club 2019
Noelle’s LFS Fight Club is taking a hike for its fifth annual fundraiser to benefit the Li-Fraumeni Syndrome Association. Noelle Johnson and her team are climbing to the top of Horsetooth Mountain, the most iconic rock in Fort Collins, CO. The six-mile hike features a 1,600-ft. elevation gain and a challenging scramble to the summit. We’re hiking for the Johnson family and others like them with Li-Fraumeni syndrome (LFS), a rare inherited genetic cancer disorder that greatly increases the risk of…
Find out more »August 2019
Youth Workshop 2019 – Boston, MA
The LFS Association is now accepting registrants for our second Youth Workshop to be held August 23rd, 24th and 25th! Our inaugural pilot program, first held in 2017, was hosted at the Huntsman Cancer Institute and was a terrific experience for the 21 teens with LFS who traveled in from around the world! The friendships that developed, not only between the teens, but also amongst the parents, have proven to be treasured relationships since our first workshop. This year’s workshop…
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