Select Language:Translation

Li-Fraumeni Syndrome Conference

A Day for Clinicians, Researchers and Families

[slideshow_deploy id=’1354′]
Photos from the Li-Fraumeni Syndrome Conference 2013

Webcasts from LFS Conference 2013

Did you miss the LFS Conference 2013? Don’t worry—you can watch the webcasts here!

October 25-26, 2013

Dana-Farber Cancer Institute, Boston, MA
October 25th from 6:00pm-8:30pm: Patient Welcome Dinner
October 26th from 8:30am-5:00pm: Conference and Patient Workshops

Welcome and Special Thanks to Our Generous Sponsor:

Also Sponsored by:
Dana-Farber Cancer Institute LiFe Consortium Li-Fraumeni Syndrome Association

Patient Welcome Dinner on Friday, October 25, 2013

NOTE: Details are subject to change.

The Inn at Longwood Medical Center
342 Longwood Avenue
Boston, MA 02115

Cocktail Hour: 6:00pm
Dinner: 7:00pm

Investigator Dinner on Friday, October 25, 2013 at 6:30pm

Investigators who are interested in attending, please contact Andreina Viera-Reyes for more information.


Book your Conference Agenda for Saturday, October 26, 2013

NOTE: Details are subject to change.

8:00am – 8:30am
Registration / Continental Breakfast

8:30am – 8:40am
Welcoming Remarks

Judy Garber and Kathy Schneider
David Malkin for the Consortium

8:40am – 10:00am
Research Updates
Uri Tabori, Toronto – Brain Tumors
Simone Hettmer, Boston – Anaplastic Rhabdomyosarcoma
Thierry Frebourg, Rouen – Functional Assays
Melissa Alderfer, Philadelphia – Testing Children for LFS

10:00am – 10:20am
LFSA Update
Jenn Perry and Rob Lufkin, Li-Fraumeni Syndrome Association

10:20am – 10:45am

10:45am – 12:30pm
Center Updates
Maria Isabel Achatz, Sao Paulo, Brazil
Louise Strong, Houston, TX, USA
Jeffrey Weitzel, Duarte, CA, USA
Wen-Yi Wang, Houston, TX, USA
Phuong Mai, Bethesda, MD, USA
Emma Killick, Sutton, UK
David Malkin, Toronto, Canada
Josh Schiffman, Salt Lake City, UT, USA
Judy Garber, Boston, MA, USA
Yukiko Tsunematsu, Tokyo, Japan

12:30pm – 1:15pm

1:15pm – 2:00pm
Living with LFS: Fireside Chat
hosted by Judy Garber and David Malkin


2:30pm – 4:15pm
LFSA Workshop
Jenn Perry and Susan Faulkner – LFSA and You!
Bonita Kline and Georgia Engrebretson – LFS Community

4:15 – 4:30pm
Closing Remarks
Judy Garber

LFS Association

We are families, like you who have been devastated by the effects of Li-Fraumeni Syndrome, a hereditary cancer predisposition syndrome. Our hopes are to educate, raise awareness and find better screening programs and treatments for LFS.


Medical Resources

We've compiled a list of doctors available to
answer your questions, LFS support and
treatment. They specialize in many different
areas, which have been listed with their


LFS News

WETB’s Gayle Ong was one of several reporters covering the event and story of LFS and Mo Songs for Kerry.

Read More…

Community Events

Carly Grant – Mohawk Hudson River Marathon 2017
Support Carly and the Li-Fraumeni Syndrome Association as she raises money and trains for the Mohawk Hudson River Marathon on October 8th!


LFS Webinars

Check out our library to watch past LFS
webinars, and to find out about
upcoming webinars!

Learn more...

LFS Awareness Brochure

Myriad Genetics is proud to partner with LFSA to launch the global LFS Education and Awareness Campaign!