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Who has LFS?

There are around 500 known families worldwide that have Li-Fraumeni Syndrome, although the exact numbers are not known. LFS does not affect one particular age, gender or race. Women tend to have a higher risk of developing cancer over their lifetime than men. Half of LFS cancers develop in childhood. Not all people with Li-Fraumeni Syndrome develop cancer.

Li-Fraumeni Syndrome is known as the “familial cancer syndrome.” Many LFS cancers are hereditary, genetic cancers. Consider genetic testing for cancer if you have a family history of cancer.

LFS Association

We are families, like you who have been devastated by the effects of Li-Fraumeni Syndrome, a hereditary cancer predisposition syndrome. Our hopes are to educate, raise awareness and find better screening programs and treatments for LFS.


Medical Resources

We've compiled a list of doctors available to
answer your questions, LFS support and
treatment. They specialize in many different
areas, which have been listed with their


LFS News

WETB’s Gayle Ong was one of several reporters covering the event and story of LFS and Mo Songs for Kerry.

Read More…

Community Events

Carly Grant – Mohawk Hudson River Marathon 2017
Support Carly and the Li-Fraumeni Syndrome Association as she raises money and trains for the Mohawk Hudson River Marathon on October 8th!


LFS Webinars

Check out our library to watch past LFS
webinars, and to find out about
upcoming webinars!

Learn more...

LFS Awareness Brochure

Myriad Genetics is proud to partner with LFSA to launch the global LFS Education and Awareness Campaign!