A Message from the LFSA President
Dear Friends of LFS Association,
As I look at all that LFSA has accomplished this year as a result of your generous and essential support, I am overflowing with gratitude. You make our progress possible. Your gifts, volunteer efforts, scientific tenacity, advocacy, and passionate commitment to eradicate LFS are at the heart of our success.
You are a shining example of what is known as the butterfly effect.
The butterfly effect explains how the single flutter of a butterfly’s wings can have a significant effect on weather on the other side of the world. It is symbolic of how a seemingly small act can result in profound change.
One sparkling example of the butterfly effect is our grant program, led by LFSA’s Scientific Advisory Board. Because of your meaningful gifts, we awarded our first LFSA grant to help fund a first-of-its-kind breast cancer study in LFS patients. This first award of $45,000 may have been small within the world of scientific research, but it was huge for the LFSA.
The gift was synonymous to a butterfly flapping its wings. As evidence, it became transformational when it served as seed money that in turn sparked interest and additional funding from
several large cancer research organizations. I am thrilled to share with you that today, the LFS breast cancer study is supported by substantial research funding and the combined scientific expertise of some of the most influential cancer researchers in the world.
Each member of the LFSA community of families, researchers, and medical experts embodies the power of a butterfly. Together, we are making a profound difference in the lives of all of us who are affected by LFS.
In acts both large and small, together, we are furthering our understanding of this syndrome and advancing scientific discovery and treatments for all who grapple with LFS. Learn more about how LFSA continues its work to support individuals and families through its consortium of fiercely dedicated researchers, medical providers, and caregivers.
Together, with your help, we are the building blocks of a future without LFS.
We are all interconnected. No act is too small to make a big difference.
With my deepest gratitude,
LFSA President, LFS patient and LFS mom