With the help of the LFSA Genetic Counseling Advisory Group, the LFSA is proud to announce the new Li-Fraumeni syndrome FAQ sheet. Take a moment to read or share the FAQs with family, friends and care providers. If you have a suggestion or a topic you would like included, please contact us at info@lfsassociation.org.
Now available!! “Robot Music: A Story for Kids with Li-Fraumeni Syndrome and other Cancer Predispositions.” Sponsored by your LFS Association, Amy Peasgood has co-written with her young daughter, Ruby, a book about Li-Fraumeni Syndrome designed for children aged 4-plus. Delightfully illustrated, it is a story is about a child navigating cancer risk and surveillance. The
Invest in the Future of Li-Fraumeni Syndrome Families. Give to LFSA on Tuesday, December 2.
Hello I am trying to find out if going through in vitro fertilization or getting pregnant would pose any risk if you have LFS? For example, due to increased oestrogen or other medications/hormones? QS
Hi I’ve just met with genetics and found out my family has LFS (long suspected). I don’t yet know if I have the gene myself – my question is, if I don’t have it does that mean my daughter definitely won’t have it? (She’s 10) or can it skip to her? Thank you for any
Hi, Our 15 year old son was diagnosed with glioblastoma grade 4. he had surgery and is currently undergoing radiation. since my father died at age 52 of esophageal cancer, my brother age 55 is currently fighting stage 4 colorectal cancer that metastasized to the lung, my 18 year old niece had phyllodes tumor recently