We are families, like you who have been devastated by the effects of Li-Fraumeni Syndrome (LFS), a hereditary genetic cancer predisposition syndrome. Our hopes are to educate, raise awareness, and find better screening programs and treatments for LFS. By forming relationships with and supporting the variety of researchers and medical staff who can help achieve this, we wish to help provide a better understanding of a complex syndrome to those who need it. We welcome communication with all professionals, researchers, scientists, doctors, patients, and families in the hopes that the bridges formed by these communities will lead to an end of the devastating effects of Li-Fraumeni and other Li-Fraumeni-like syndromes.

In November 2010, with the support of the United States’ National Institute of Health (NIH) and the world’s medical leaders of the Li-Fraumeni Syndrome, we all met in Washington D.C. at the first Li-Fraumeni Syndrome Conference. One month later, in December 2010, we officially formed the LFS Association and selected our inaugural Board of Directors.

(Photo credit:  Division of Cancer Epidemiology and Genetics, National Cancer Institute.)

Uncovering the Causes of Cancer in the Division of Cancer Epidemiology and Genetics (DCEG) at the National Cancer Institute: Watch DCEG Director Dr. Stephen Chanock discuss the visionary work of Drs. Joseph Fraumeni, Robert Hoover, and Margaret Tucker as the first generation of researchers at NCI to focus on the etiology of cancer and the environmental, lifestyle, and genetic influences on cancer. Also featured is Dr. Maria Achatz, the principal investigator of the LFS study at NCI, discussing the early discovery of LFS and the significance of LFS research in  carcinogenesis, in general. (October 2017)

Learn More About the Next Generation of LFS Researchers

Dr. Judy Garber

• Dana-Farber Cancer Institute (DFCI) Profile
• American Association for Cancer Research’s Biography
• Judy Garber, MD, MPH, Elected to Institute of Medicine
• LFS Association Medical Advisory Board Member
• Li-Fraumeni Syndrome: Report of a Clinical Research Workshop and Creation of a Research Consortium

Dr. David Malkin

• The Hospital for Sick Children’s Biography
• LFS Association International Chapter Chair – Canada
• LFS Association Medical Advisory Board Member
• 2014  Li-Fraumeni syndrome: TP53 and Beyond

Dr. Louise Strong

• American Association of Cancer Research Biography
• LFS Association Medical Advisory Board Member
• 2014  Li-Fraumeni Syndrome:  Discovery and Future Challenges
  

Dr. Joshua Schiffman

• Huntsman Cancer Institute’s Biography
• The Schiffman Lab
• LFS Association Medical Advisory Board Member

Dr. Sharon Savage

• National Cancer Institute’s Division of Cancer Epidemiology and Genetics Biography
• LFS Association Medical Advisory Board Member

Dr Maria Isabel Waddington Achatz, MD

• Sue Armstrong’s “Brazil’s Cancer Curse” (published September 15, 2015).
• LFS Association International Chapter Chair – Latin America
• LFS Association Scientific Advisory Board Member

Dr. Christian Kratz, MD

• Medizinische Hochschule Hannover
• LFS Association International Chapter Chair – Germany
• LFS Association Medical Advisory Board Member

Dr. Kim E. Nichols, MD

• St. Jude’s Children’s Research Hospital – Division of Cancer Predisposition

Dr. Phuong Mai, MD

• LFS Association Medical Advisory Board

Dr. Payal Kincha, MD

• NCI – Division of Cancer Epidemiology and Genetics

Dr. Gareth Evans, MD

• University of Manchester

Dr. Jeffrey Weitzel, MD

• City of Hope

It is with heartfelt appreciation that we acknowledge Sabre Digital Marketing for their continued support with our website, which is our first ever communication tool linking our worldwide LFS community together. Without Sabre Digital Marketing, none of this would have been possible – Thank you!