Founding | Li-Fraumeni Syndrome Association
We are families, like you who have been devastated by the effects of Li-Fraumeni Syndrome (LFS), a hereditary genetic cancer predisposition syndrome. Our hopes are to educate, raise awareness, and find better screening programs and treatments for LFS. By forming relationships with and supporting the variety of researchers and medical staff who can help achieve this, we wish to help provide a better understanding of a complex syndrome to those who need it. We welcome communication with all professionals, researchers, scientists, doctors, patients, and families in the hopes that the bridges formed by these communities will lead to an end of the devastating effects of Li-Fraumeni and other Li-Fraumeni-like syndromes.
In November 2010, with the support of the United States’ National Institute of Health (NIH) and the world’s medical leaders of the Li-Fraumeni Syndrome, we all met in Washington D.C. at the first Li-Fraumeni Syndrome Conference. One month later, in December 2010, we officially formed the LFS Association and selected our inaugural Board of Directors.
Learn More About Drs. Frederick Li and Joseph Fraumeni
- National Cancer Institute’s Symposium Celebrating 50 Years of Dr. Joseph Fraumeni’s Visionary Leadership (May 2014). See the agenda and video presentations for each speaker, to include the closing remarks on Dr. Fraumeni’s incredible accomplishments.
- “Li-Fraumeni Syndrome: Discovery and Future Challenges” with Dr. David Schottenfeld and Dr. Louise Strong
- “Li-Fraumeni Syndrome: TP53 and Beyond” with Dr. David Malkin
- Duke Medical Alumni Association awards Dr. Joseph Fraumeni the Lifetime Achievement Award – see the video (October 2014)
- Dr. Frederick Pei Li awarded as Fellow by the American Association of Cancer Research – see his career highlights (2014)
- Dr. Joseph Fraumeni awarded as Fellow by the American Association of Cancer Research – see his career highlights (2014)
- A Conversation with Joseph F. Fraumeni, Jr. with Dr. Robert N. Hoover, then director of DCEG (November 2013)
- Honoring Joseph Fraumeni – NCI’s Division of Cancer Epidemiology and Genetics’ Linkage newsletter (2012)
- Li-Fraumeni Syndrome: Report of a Clinical Research Workshop and Creation of a Research Consortium (published 2012)
- Celebration of the Career of Frederick P. Li (2008) Remarks by Dr. Fraumeni at Dr. Li’s retirement: “It is a pleasure to pay tribute…
- Frederick Pei Li – Wikipedia bio
- Dr. Joseph Fraumeni – Wikipedia bio
- Charles S. Mott Prize awarded by the General Motors Cancer Research Foundation for the work of Drs. Li and Fraumeni (1995)
- How a Hereditary Multicancer Syndrome Was Discovered (adapted from 1995)
“In the 1960s, Joseph F. Fraumeni, Jr., M.D., and Dr. Robert W. Miller, in what was then the Epidemiology Branch of NCI, began an exploration into the epidemiological patterns of childhood and familial cancer about which little was known…” [Read More] - “Dr. Frederick P. Li, 75; helped prove genetic cancer link” Boston Globe Obituary (June 17, 2015)
- New York Times tribute article to Dr. Frederick Li (June 21, 2015)
- NCI’s Division of Cancer Epidemiology and Genetics published tribute to Dr. Frederick P. Li in this summer’s Linkage newsletter
- National Institutes of Health’s NIH Record published tribute to Dr. Li, Li Mourned – Pioneer in Genetic Causes of Cancer
- The History of a Name: The American Society for Preventive Oncology Renames Its Highest Honor The Joseph F. Fraumeni, Jr., Distinguished Achievement Award
Uncovering the Causes of Cancer in the Division of Cancer Epidemiology and Genetics (DCEG) at the National Cancer Institute: Watch DCEG Director Dr. Stephen Chanock discuss the visionary work of Drs. Joseph Fraumeni, Robert Hoover, and Margaret Tucker as the first generation of researchers at NCI to focus on the etiology of cancer and the environmental, lifestyle, and genetic influences on cancer. Also featured is Dr. Maria Achatz, the principal investigator of the LFS study at NCI, discussing the early discovery of LFS and the significance of LFS research in carcinogenesis, in general. (October 2017)
Learn More About the Next Generation of LFS Researchers
Dr. Judy Garber
- Dana-Farber Cancer Institute (DFCI) Profile
- American Association for Cancer Research’s Biography
- Judy Garber, MD, MPH, Elected to Institute of Medicine
- Li-Fraumeni Syndrome: Report of a Clinical Research Workshop and Creation of a Research Consortium
Dr. David Malkin
Dr. Louise Strong
Dr. Joshua Schiffman
Dr. Sharon Savage
Dr. Maria Isabel Waddington Achatz, MD
- National Cancer Insitute’s Division of Cancer Epidemiology and Genetics Biography
- Sue Armstrong’s “Brazil’s Cancer Curse” (published September 15, 2015)
Dr. Christian Kratz, MD
- Medizinische Hochschule Hannover – Curriculum vitae
- LFS Association International Chapter Chair – Germany
Dr. Jeffrey Weitzel, MD
It is with heartfelt appreciation that we acknowledge Sabre Digital Creative for their continued support with our website, which is our first ever communication tool linking our worldwide LFS community together. Without Sabre Digital Creative, none of this would have been possible – Thank you!