We are families, like you who have been devastated by the effects of Li-Fraumeni Syndrome (LFS), a hereditary genetic cancer predisposition syndrome. Our hopes are to educate, raise awareness, and find better screening programs and treatments for LFS. By forming relationships with and supporting the variety of researchers and medical staff who can help achieve this, we wish to help provide a better understanding of a complex syndrome to those who need it. We welcome communication with all professionals, researchers, scientists, doctors, patients, and families in the hopes that the bridges formed by these communities will lead to an end of the devastating effects of Li-Fraumeni and other Li-Fraumeni-like syndromes.
In November 2010, with the support of the United States’ National Institute of Health (NIH) and the world’s medical leaders of the Li-Fraumeni Syndrome, we all met in Washington D.C. at the first Li-Fraumeni Syndrome Conference. One month later, in December 2010, we officially formed the LFS Association and selected our inaugural Board of Directors.
Learn More About Drs. Frederick Li and Joseph Fraumeni
Charles S. Mott Prize awarded by the General Motors Cancer Research Foundation for the work of Drs. Li and Fraumeni (1995)
How a Hereditary Multicancer Syndrome Was Discovered (adapted from 1995)
“In the 1960s, Joseph F. Fraumeni, Jr., M.D., and Dr. Robert W. Miller, in what was then the Epidemiology Branch of NCI, began an exploration into the epidemiological patterns of childhood and familial cancer about which little was known…” [Read More]
The History of a Name: The American Society for Preventive Oncology Renames Its Highest Honor The Joseph F. Fraumeni, Jr., Distinguished Achievement Award
Uncovering the Causes of Cancer in the Division of Cancer Epidemiology and Genetics (DCEG) at the National Cancer Institute: Watch DCEG Director Dr. Stephen Chanock discuss the visionary work of Drs. Joseph Fraumeni, Robert Hoover, and Margaret Tucker as the first generation of researchers at NCI to focus on the etiology of cancer and the environmental, lifestyle, and genetic influences on cancer. Also featured is Dr. Maria Achatz, the principal investigator of the LFS study at NCI, discussing the early discovery of LFS and the significance of LFS research in carcinogenesis, in general. (October 2017)
Learn More About the Next Generation of LFS Researchers
It is with heartfelt appreciation that we acknowledge Sabre Digital Creativefor their continued support with our website, which is our first ever communication tool linking our worldwide LFS community together. Without Sabre Digital Creative, none of this would have been possible – Thank you!