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Reference Materials

NCI Fact Sheet:  Cancer in Children and Adolescents (May 2014)

NCI Patient Education: Pain Control – Support for People with Cancer (May 2014)

NCI  Li-Fraumeni Syndrome Study list of publications

NCI Fact Sheet:  Cancer Staging (January 2015)

NCI Cancer Topics:  Coping with Cancer (December 2015)

Cancer.Net:  Li-Fraumeni Syndrome (November 2014)

NCI Patient Education Publications (October 2014)

NCI Fact Sheet:  Targeted Cancer Therapies (April 2013)

MD Anderson Cancer Center’s Patient Education handout: Li-Fraumeni Syndrome  (April 2014)

NCI Fact Sheet:  Genetic Testing for Hereditary Cancer Syndromes (April 2013)

NCBI GeneReview:  Li-Fraumeni Syndrome (Schneider, Zelley, Nichols, & Garber, April 2013)

NCI Fact Sheet:  Cancer Clinical Trials (February 2013)

The birth of the LiFE Consortium and the roots of the LFS Association – Li-Fraumeni Syndrome:  report of clinical research workshop and creation of a research consortium (August 2012)

NCBI Bookshelf:  Li-Fraumeni Syndrome (Malkin, April 2011)


Cancers reported in LFS families.  Click on the cancer type to reach the National Cancer Institute’s patient education library:

Carcinomas (cancers that originate in a tissue that lines the inner or outer surfaces of the body, also known as epithelial cells)

Sarcomas (cancers that arises from transformed cells of mesenchymal origins)

Leukemias (originate from bone marrow) and Lymphomas (originate in the lymphatic tissues)

Skin cancers



LFS Association

We are families, like you who have been devastated by the effects of Li-Fraumeni Syndrome, a hereditary cancer predisposition syndrome. Our hopes are to educate, raise awareness and find better screening programs and treatments for LFS.


Medical Resources

We've compiled a list of doctors available to
answer your questions, LFS support and
treatment. They specialize in many different
areas, which have been listed with their


LFS News

WETB’s Gayle Ong was one of several reporters covering the event and story of LFS and Mo Songs for Kerry.

Read More…

Community Events

Carly Grant – Mohawk Hudson River Marathon 2017
Support Carly and the Li-Fraumeni Syndrome Association as she raises money and trains for the Mohawk Hudson River Marathon on October 8th!


LFS Webinars

Check out our library to watch past LFS
webinars, and to find out about
upcoming webinars!

Learn more...

LFS Awareness Brochure

Myriad Genetics is proud to partner with LFSA to launch the global LFS Education and Awareness Campaign!