Listed below are current LFS clinical trials, LFS research studies, and LFS patient surveillance programs:
The Kinghorn Cancer Centre and Cancer Division
Young People with Li-Fraumeni Syndrome: are their psychosocial needs being met? This study aims to understand how young people experience Li-Fraumeni syndrome on a day-to-day basis, and what their age-specific support needs are. We aim to make recommendations for the development of psychosocial model of support specifically for young people with or at risk of LFS. Learn more here. Contact:
Mr Rowan Forbes Shepherd
Qualitative Health Research
Phone: 03 8559 6194
The trials listing will be updated periodically. See how you can participate and potentially benefit.