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Clinical Trials, Patient Studies, and Surveillance Programs

Listed below are current LFS clinical trials, LFS research studies, and LFS patient surveillance programs:

Dana-Farber Cancer Institute

University of Texas’s MD Anderson Cancer Center

October 2013 Start Date

National Cancer Institute’s Center for Cancer Research, Bethesda, Maryland

October 2012 Start Date

Institute of Cancer Research, Surrey,  United Kingdom

September 2011 Start Date

National Institutes of Health Clinical Center, Bethesda, Maryland

September 2011 Start Date

Institut Gustave Roussy, Villejuif, France

May 2011 Start Date

University of Utah’s Cancer Genetics Study

November 2006 Start Date



The trials listing will be updated periodically.  See how you can participate and potentially benefit.

LFS Association

We are families, like you who have been devastated by the effects of Li-Fraumeni Syndrome, a hereditary cancer predisposition syndrome. Our hopes are to educate, raise awareness and find better screening programs and treatments for LFS.


Medical Resources

We've compiled a list of doctors available to
answer your questions, LFS support and
treatment. They specialize in many different
areas, which have been listed with their


LFS News

WETB’s Gayle Ong was one of several reporters covering the event and story of LFS and Mo Songs for Kerry.

Read More…

Community Events

Carly Grant – Mohawk Hudson River Marathon 2017
Support Carly and the Li-Fraumeni Syndrome Association as she raises money and trains for the Mohawk Hudson River Marathon on October 8th!


LFS Webinars

Check out our library to watch past LFS
webinars, and to find out about
upcoming webinars!

Learn more...

LFS Awareness Brochure

Myriad Genetics is proud to partner with LFSA to launch the global LFS Education and Awareness Campaign!