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It is the mission of the LFSA as a patient advocacy organization to promote an increased understanding of Li-Fraumeni Syndrome (LFS) and foster scientific advancement that will improve the lives of those living with LFS. We have been aided in this endeavor by the recent formation of a LFS Research Consortium. This group is made up of dedicated physicians and scientists from all over the world with an interest in LFS. It is the hope of the LFSA that through our collaborative efforts we can make great progress in the battle against LFS.

Current areas of active research in the National Cancer Institute’s Li-Fraumeni Syndrome Study include:

  • Developing better LFS cancer screening protocols for patients living with LFS
  • Determining the influences of environmental factors, diet and metabolism on Li-Fraumeni Syndrome
  • Identification of modifying genes and epigenetic events that lead to cancer development in LFS
  • Utilizing chemoprevention strategies for patients with LFS

If you have LFS, participation in the study could help researchers in the areas of genetic epidemiology, medical management, and living with LFS. Please reference eligibility criteria for additional information.


LFS Association

We are families, like you who have been devastated by the effects of Li-Fraumeni Syndrome, a hereditary cancer predisposition syndrome. Our hopes are to educate, raise awareness and find better screening programs and treatments for LFS.


Medical Resources

We've compiled a list of doctors available to
answer your questions, LFS support and
treatment. They specialize in many different
areas, which have been listed with their


LFS News

WETB’s Gayle Ong was one of several reporters covering the event and story of LFS and Mo Songs for Kerry.

Read More…

Community Events

Carly Grant – Mohawk Hudson River Marathon 2017
Support Carly and the Li-Fraumeni Syndrome Association as she raises money and trains for the Mohawk Hudson River Marathon on October 8th!


LFS Webinars

Check out our library to watch past LFS
webinars, and to find out about
upcoming webinars!

Learn more...

LFS Awareness Brochure

Myriad Genetics is proud to partner with LFSA to launch the global LFS Education and Awareness Campaign!