Among our dear friends based in Australia is a genetic counselor conducting research on bibliotherapy as a model for the delivery of health information to children at-risk between 5-10 years of age. Georgina Schlub has developed a storybook to help parents talk with their young children about staying healthy and safe while living with LFS.
Help support our 2019 LFSA Youth Conference by buying a square for our upcoming Cow Pie Contest! You do not have to be present at the event to participate and enter for the chance to win. Buy your tickets here!
Now available!! “Robot Music: A Story for Kids with Li-Fraumeni Syndrome and other Cancer Predispositions.” Sponsored by your LFS Association, Amy Peasgood has co-written with her young daughter, Ruby, a book about Li-Fraumeni Syndrome designed for children aged 4-plus. Delightfully illustrated, it is a story is about a child navigating cancer risk and surveillance. The
Unraveling why some people get not one, not two, but many cancers. The Washington Post interviews LFSA volunteer and LFS patient Noelle Johnson, along with LFSA Medical Advisory Board Member Dr. Josh Schiffman of the Huntsman Cancer Institute.
Local: Hospital Sírio-Libanês – IEP – R. Prof. Daher Cutait, 69 – Bela Vista, São Paulo – SP. Data: 27 de novembro de 2018. PROGRAMAÇÃO Manhã 09:00 – Recepção e Registro 09:30 – Abertura do evento (Yasmin Shaaban, LFSA, São Paulo) 09:40 – Atualização na LFS (Dra. Maria Isabel Achatz, LFSA e Hospital Sírio-Libanês, São
On Saturday, November 10th, 2018, LFSA President Jenn Perry addressed the Deaf Cancer Survivors Support Group at Miriam Hospital in Providence, Rhode Island. Jenn learned how the LFSA can better support any of our community members that may be deaf or are hard of hearing, and the audience learned about LFS and the promising progress
What is Li-Fraumeni Syndrome? | Dana-Farber Cancer Institute Dr. Judy Garber, Director of the Center for Cancer Genetics and Prevention at the Dana-Farber Cancer Institute talks about LFS and recent developments in research. Watch the video below!
The LFS Association’s Genetic Counselor Advisory Group is working diligently to establish a genetic counseling directory. If you provide genetic counseling to patients with LFS, and have access to LFS screening protocols (like whole body MRI), please complete the survey below. To our patient families – please “share” to those who care!! https://redcap.coh.org/surveys/?s=KY7PD8H3RT
On behalf of the Cancer Predisposition Program at St. Jude Children’s Research Hospital, we invite you and your immediate family to our inaugural Cancer Predisposition Family Conference weekend, June 8-10, 2018. The Cancer Predisposition Family Conference was created to bring together families with hereditary predisposition to cancer for a weekend of education, relaxation and fun!