Li-Fraumeni Syndrome Family Education Day at Children’s National
Families of children with Li-Fraumeni syndrome are invited to join a dedicated day of education, connection, and support at Children’s National Hospital.
Katherine M. Howley Endowment Fund for LFS Research
The Li-Fraumeni Syndrome Association (LFSA) is honored to announce the establishment of the Katherine M. Howley Endowment Fund for Li-Fraumeni Syndrome
LFSA at the SU2C Summit: Progress Through Partnership
As I reflect on my recent trip to California to attend the Stand Up To Cancer Scientific (SU2C) Summit, it is
Radiotherapy in Li-Fraumeni Syndrome: From Biological Concern to Personalized Clinical Decision-Making
The use of radiation is a challenge for Li-Fraumeni syndrome patients in regard to the increased risk of developing secondary,
Cancer’s Financial Impact on Young Adults – includes Financial Resources & Useful Tips
The American Association of Cancer Research (AACR) has published a useful article on the financial impact of young adults who have
Concerns about the consequences of cancer predisposition and relationships with quality of life in young adults with Li-Fraumeni syndrome
Researchers continue to study the psycho-social impact of Li-Fraumeni syndrome on young adults and their concerns about LFS, determining that
A prospective study of Annual Whole-Body MRI as Part of a Multimodality Screening Program for Individuals with Li-Fraumeni Syndrome
US-based researchers assessed the performance of (non-contrast) annual whole-body MRI as part of a multimodality screening for individuals with Li-Fraumeni
Lesko-Fleming Empowerment Grants
Through the tremendous generosity of the Lesko and Fleming families, a newly established annual grant program will provide support for two youth personally
Li-Fraumeni Syndrome Family Education Day at Children’s National
Families of children with Li-Fraumeni syndrome are invited to join a dedicated day of education, connection, and support
Katherine M. Howley Endowment Fund for LFS Research
The Li-Fraumeni Syndrome Association (LFSA) is honored to announce the establishment of the Katherine M. Howley Endowment
LFSA at the SU2C Summit: Progress Through Partnership
As I reflect on my recent trip to California to attend the Stand Up To Cancer Scientific
Facing Sarcoma: Science, Loss, & the Power of Advocacy Podcast
Hosted by Upstate Medical University during Sarcoma Awareness Month, LFSA’s Kathy Higgins, Director of Education and Awareness, sat down with orthopedic oncologist and clinician-scientist
p53 Prophylactic Therapy for Cancer Prevention
Researchers in Singapore, Professor Kanaga Sagapathy and Christian Krueger, have published research demonstrating that introducing a third copy of the Trp53 gene in mice delays
p53 Prophylactic Therapy for Cancer Prevention
Cancer Resilient Elephants The tumor suppressor Tp53 is the most mutated gene in cancers. Germ-line variations in Tp53 lead to cancer predisposition, as
New 2025 AACR Screening Guidelines for Li‑Fraumeni Syndrome Now Available
The 2025 updated screening recommendations for individuals with Li-Fraumeni syndrome (LFS) are now available from the American Association for Cancer Research (AACR), as published in
Optimizing shared decision-making for risk-reducing mastectomy in women with Li–Fraumeni syndrome using patient-reported outcome measures
Li-Fraumeni syndrome (LFS) researchers in Brazil studied factors in determining quality of life issues for women living with LFS who consider risk-reducing mastectomies – one
Attention Young Adults between 18-29 living in the US of A!
Would you like to participate in a research study at the National Cancer Institute that is developing a mental health resource for young adults with
