Lesko-Fleming Empowerment Grants
Through the tremendous generosity of the Lesko and Fleming families, a newly established annual grant program will provide support for two
Novel tool more accurately predicts risk of Li-Fraumeni Syndrome
Our friends at MD Anderson have published the results from their prospective study validating a new, user-friendly method in determining if genetic
Li-Fraumeni Syndrome Family Education Day at Children’s National
Families of children with Li-Fraumeni syndrome are invited to join a dedicated day of education, connection, and support at Children’s National Hospital.
LFSA at the SU2C Summit: Progress Through Partnership
As I reflect on my recent trip to California to attend the Stand Up To Cancer Scientific (SU2C) Summit,
Lakita Frida – the Face of Resilience
Lakita Frida was an energetic dynamo when she attended her first LFSA Youth Workshop in New York City back in
Radiotherapy in Li-Fraumeni Syndrome: From Biological Concern to Personalized Clinical Decision-Making
The use of radiation is a challenge for Li-Fraumeni syndrome patients in regard to the increased risk of developing secondary,
Cancer’s Financial Impact on Young Adults – includes Financial Resources & Useful Tips
The American Association of Cancer Research (AACR) has published a useful article on the financial impact of young adults who have
Collaboration or Partnership?
I had the opportunity to attend two conferences last month. The first brought me to Lugano, Switzerland, for the ESMO Sarcoma & Rare Cancers
Lesko-Fleming Empowerment Grants
Through the tremendous generosity of the Lesko and Fleming families, a newly established annual grant program will
Novel tool more accurately predicts risk of Li-Fraumeni Syndrome
Our friends at MD Anderson have published the results from their prospective study validating a new, user-friendly method
Li-Fraumeni Syndrome Family Education Day at Children’s National
Families of children with Li-Fraumeni syndrome are invited to join a dedicated day of education, connection, and support
Optimizing whole-body MRI for early cancer detection in Li-Fraumeni syndrome
New prospective data from a German study indicate that annual whole-body MRI for LFS surveillance could be shortened and may not require contrast agent
LFSA – Africa! “Rare genetic disorder that helps cancer run in families”
Lakita at the LFSA's Youth Workshop in 2023 LFSA - Africa's Media Relations Specialist Joel Magu has published another article in Kenyan news
Facing Sarcoma: Science, Loss, & the Power of Advocacy Podcast
Hosted by Upstate Medical University during Sarcoma Awareness Month, LFSA’s Kathy Higgins, Director of Education and Awareness, sat down with orthopedic oncologist and clinician-scientist
p53 Prophylactic Therapy for Cancer Prevention
Researchers in Singapore, Professor Kanaga Sagapathy and Christian Krueger, have published research demonstrating that introducing a third copy of the Trp53 gene in mice delays
p53 Prophylactic Therapy for Cancer Prevention
Cancer Resilient Elephants The tumor suppressor Tp53 is the most mutated gene in cancers. Germ-line variations in Tp53 lead to cancer predisposition, as
New 2025 AACR Screening Guidelines for Li‑Fraumeni Syndrome Now Available
The 2025 updated screening recommendations for individuals with Li-Fraumeni syndrome (LFS) are now available from the American Association for Cancer Research (AACR), as published in
