Empowering the Next Generation: The 2025 Youth Workshop is taking place in Boston, MA, in partnership with Boston Children’s Hospital and Dana-Farber Cancer Institute, this transformative weekend offers peer connection, educational resources, and empowering experiences to youth and young adults living with Li-Fraumeni syndrome (LFS). Welcoming LFS youth & young adults ages 13-25. Click here
Explore Genotype-Phenotype Correlations in LFS with Dr. Christian Kratz We’re thrilled to invite you to a special Zoom webinar with internationally recognized researcher Dr. Christian Kratz, whose work at Hannover Medical School is advancing our understanding of genetic cancer risk in children and families. Dr. Kratz will share insights into how specific TP53 mutations relate to
Rowan Forbes-Shepherd, Ph.D. Feeling anxious before a cancer scan? You’re not alone. Join the LFS Association for an important conversation on scanxiety in the LFS community, presented by Rowan Forbes-Shepherd, Ph.D., National Cancer Institute. Many people with rare inherited cancer conditions like Li-Fraumeni syndrome (LFS) experience what’s known as scanxiety—the stress or worry that comes
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