Whole Body MRI Anxiety
A unique aspect of the LFSA International Symposium is the intersection of LFS families among globally renowned medical and scientific experts.
Another survey opportunity: Risk-reducing mastectomy decision making process for adolescents and young adults with Li-Fraumeni Syndrome
Another invitation to participate in a study about the risk-reducing mastectomy decision making process for adolescents and young adults with Li-Fraumeni
Jenn Perry on WEEI for Jimmy Fund Telethon
LFSA founder Jenn Perry shares her family's LFS story and what motivates her to advocate for research and advancements to support those
Marina
My name is Marina, I am 43 years old and I discovered I have the syndrome in 2019 after my
Barbara
I discovered the syndrome in January 2021, after my uncle underwent genetic testing in an attempt to find a better
Isabel
I discovered Li-Fraumeni syndrome in 2017, after breast cancer at the age of 20. The oncologist requested genetic testing,
Janaína
I lost my mother to cancer in 2018. She had two types: lung carcinoma and brain astrocytoma. They mentioned it
Attention Young Adults between 18-29 living in the US of A!
Would you like to participate in a research study at the National Cancer Institute that is developing a mental health resource for young adults
Whole Body MRI Anxiety
A unique aspect of the LFSA International Symposium is the intersection of LFS families among globally renowned
Another survey opportunity: Risk-reducing mastectomy decision making process for adolescents and young adults with Li-Fraumeni Syndrome
Another invitation to participate in a study about the risk-reducing mastectomy decision making process for adolescents and
Jenn Perry on WEEI for Jimmy Fund Telethon
LFSA founder Jenn Perry shares her family's LFS story and what motivates her to advocate for research
Krystal
I was diagnosed with Li-Fraumeni syndrome in my late twenties and the diagnosis shocked me. First of all, I’d never heard of it and secondly,
Peter
Mr. Peter Weru was born in 1983 born healthy with no medical issues at the age of 32yrs. I started experiencing some pain on my
Debora
Debora Scardino Mancebo, 34 years old, from São Paulo, Brazil. She had breast cancer at 30 years old. Cancer has always been something I had
Olivia
Olívia Naves, 22 years old, she never had cancer, from São Paulo, Brazil Hello! My name is Olívia Naves and I’m 22 years old. Having
Ana
Ana Caroline, 37 years old, from Belo Horizonte, Brazil. Never had cancer. When I was diagnosed with Li-Fraumeni, I was impacted in many ways because
Lakita
Lakita was born healthy with no medical issues in 2006 and loved dancing and art. At the age of 10 In the year (2017) she
