Another survey opportunity: Risk-reducing mastectomy decision making process for adolescents and young adults with Li-Fraumeni Syndrome
Another invitation to participate in a study about the risk-reducing mastectomy decision making process for adolescents and young adults with Li-Fraumeni
Jenn Perry on WEEI for Jimmy Fund Telethon
LFSA founder Jenn Perry shares her family's LFS story and what motivates her to advocate for research and advancements to support those
2011: Monograph on Li-Fraumeni Syndrome by David Malkin
Li-Fraumeni syndrome (LFS) is a genetic disorder linked to mutations in the p53 tumor suppressor gene, leading to a wide range of
Marina
My name is Marina, I am 43 years old and I discovered I have the syndrome in 2019 after my
Barbara
I discovered the syndrome in January 2021, after my uncle underwent genetic testing in an attempt to find a better
Isabel
I discovered Li-Fraumeni syndrome in 2017, after breast cancer at the age of 20. The oncologist requested genetic testing,
Janaína
I lost my mother to cancer in 2018. She had two types: lung carcinoma and brain astrocytoma. They mentioned it
Seeking Participants for the INFORM Research Study
Dana-Farber is leading an IRB-approved study that will screen for many of the deadliest cancers with a first-of-its-kind blood test. This test will
Another survey opportunity: Risk-reducing mastectomy decision making process for adolescents and young adults with Li-Fraumeni Syndrome
Another invitation to participate in a study about the risk-reducing mastectomy decision making process for adolescents and
Jenn Perry on WEEI for Jimmy Fund Telethon
LFSA founder Jenn Perry shares her family's LFS story and what motivates her to advocate for research
2011: Monograph on Li-Fraumeni Syndrome by David Malkin
Li-Fraumeni syndrome (LFS) is a genetic disorder linked to mutations in the p53 tumor suppressor gene, leading to
Elenore & Aaron
Li-Fraumeni Syndrome (LFS) impacted our family in an unexpected way. At the young age of 35, my husband’s sister was diagnosed with breast cancer. Due
Tara
My name is Tara Agnew and I was 26 years old when my life turned upside down. I thought my life and my future got
Krystal
I was diagnosed with Li-Fraumeni syndrome in my late twenties and the diagnosis shocked me. First of all, I’d never heard of it and secondly,
Peter
Mr. Peter Weru was born in 1983 born healthy with no medical issues at the age of 32yrs. I started experiencing some pain on my
Debora
Debora Scardino Mancebo, 34 years old, from São Paulo, Brazil. She had breast cancer at 30 years old. Cancer has always been something I had
Olivia
Olívia Naves, 22 years old, she never had cancer, from São Paulo, Brazil Hello! My name is Olívia Naves and I’m 22 years old. Having
