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  • Webinar: Understanding ‘scanxiety’ among individuals with LFS undergoing periodic cancer screening

    Virtual

    Rowan Forbes-Shepherd, Ph.D. Feeling anxious before a cancer scan? You’re not alone. Join the LFS Association for an important conversation on scanxiety in the LFS community, presented by Rowan Forbes-Shepherd, Ph.D., National Cancer Institute. Many people with rare inherited cancer conditions like Li-Fraumeni syndrome (LFS) experience what’s known as scanxiety—the stress or worry

  • Webinar: Li-Fraumeni Syndrome: Genotype-Phenotype Correlations

    Virtual

    Explore Genotype-Phenotype Correlations in LFS with Dr. Christian Kratz We’re thrilled to invite you to a special Zoom webinar with internationally recognized researcher Dr. Christian Kratz, whose work at Hannover Medical School is advancing our understanding of genetic cancer risk in children and families. Dr. Kratz will share insights into how specific TP53 mutations relate to

  • 2025 LFSA Youth Workshop – Boston

    Sheraton Boston 39 Dalton St, Boston, MA, United States

    Empowering the Next Generation: The 2025 Youth Workshop is taking place in Boston, MA, in partnership with Boston Children’s Hospital and Dana-Farber Cancer Institute, this transformative weekend offers peer connection, educational resources, and empowering experiences to youth and young adults living with Li-Fraumeni syndrome (LFS). Welcoming LFS youth & young adults ages 13-25. Click here

  • AYA-RISE Webinar: Cancer Risk Communication for AYAs

    Virtual

    The AYA-RISE Intervention: Risk Information and Screening Education for Adolescents and Young Adults with Cancer Risk Dr. Mack will share initial results from the AYA-RISE intervention trial, a groundbreaking study designed to improve how adolescents and young adults (AYAs) with cancer risk syndromes, such as Li-Fraumeni syndrome, receive and process critical cancer risk information. By

  • 9th Annual Hereditary Cancer Symposium

    MD Anderson - Duncan Building, Houston, TX 1155 Pressler St, Houston, TX, United States

    Target Audience Specialties - Adult Cardiac Anesthesiology, Cardiovascular Disease, Clinical Genetics and Genomics (MD), Colon and Rectal Surgery, Complex Family Planning, Congenital Cardiac Surgery, Dermatology, Gastroenterology, Gynecologic Oncology, Hematology, Laboratory Genetics and Genomics, Medical Genetics and Genomics, Medical Oncology, Molecular Genetic Pathology, Nephrology, Obstetrics and Gynecology, Pathology, Pathology - Clinical, Pediatric Dermatology, Pediatric Endocrinology, Pediatric

  • Explore Essential Resources for LFS Families and Providers

    Virtual

    Watch the Explore Essential Resources for LFS Families and Providers Webinar Presented by LFSA Genetic Counselor Advisory Group Co-Chair Megan Frone and LFSA President Jenn Perry, this session offers a clear, user-friendly tour of essential resources for families and healthcare providers navigating LFS. Watch the recording!