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Founding

Frederick Li and Joseph FraumeniWe are families, like you who have been devastated by the effects of Li-Fraumeni Syndrome (LFS), a hereditary genetic cancer predisposition syndrome. Our hopes are to educate, raise awareness, and find better screening programs and treatments for LFS. By forming relationships with and supporting the variety of researchers and medical staff who can help achieve this, we wish to help provide a better understanding of a complex syndrome to those who need it. We welcome communication with all professionals, researchers, scientists, doctors, patients, and families in the hopes that the bridges formed by these communities will lead to an end of the devastating effects of Li-Fraumeni and other Li-Fraumeni-like syndromes.

In November 2010, with the support of the United States’ National Institute of Health (NIH) and the world’s medical leaders of the Li-Fraumeni Syndrome, we all met in Washington D.C. at the first Li-Fraumeni Syndrome Conference. One month later, in December 2010, we officially formed the LFS Association and selected our inaugural Board of Directors.

Learn More About Drs. Frederick Li and Joseph Fraumeni

Li-Fraumeni Exploration Consortium

Learn More About the Next Generation of LFS Researchers

Dr. Judy Garber

Dr. David Malkin

Dr. Louise Strong

Dr. Joshua Schiffman

Dr. Sharon Savage

Dr. Maria Isabel Waddington Achatz, MD

 

It is with heartfelt appreciation that we acknowledge Sabre Imagery for donating this website, which is our first ever communication tool linking our worldwide LFS community together. Without Sabre Imagery, none of this would have been possible – Thank you!

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LFS Association

We are families, like you who have been devastated by the effects of Li-Fraumeni Syndrome, a hereditary cancer predisposition syndrome. Our hopes are to educate, raise awareness and find better screening programs and treatments for LFS.

Read more...

Medical Resources

We've compiled a list of doctors available to
answer your questions, LFS support and
treatment. They specialize in many different
areas, which have been listed with their
information.

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LFS News

Personal Appeal for Notes of Appreciation for LFS Founding Fathers.

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Community Events

Regional Bakery Starts Fundraising Campaign for Childhood Cancer Awareness Month
The campaign focuses on the sales of elephant-shaped sugar cookies, which will be available at all 52 Kneaders locations.

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LFS Webinars

Check out our library to watch past LFS
webinars, and to find out about
upcoming webinars!

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LFS Awareness Brochure

Myriad Genetics is proud to partner with LFSA to launch the global LFS Education and Awareness Campaign!


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