The use of radiation is a challenge for Li-Fraumeni syndrome patients in regard to the
Researchers continue to study the psycho-social impact of Li-Fraumeni syndrome on young adults and their
New prospective data from a German study indicate that annual whole-body MRI
Hosted by Upstate Medical University during Sarcoma Awareness Month, LFSA’s Kathy Higgins, Director
The 2025 updated screening recommendations for individuals with Li-Fraumeni syndrome (LFS) are now available from
Li-Fraumeni syndrome (LFS) researchers in Brazil studied factors in determining quality of life issues for
UK researchers conducted a retrospective case-series study of four children diagnosed with
In October 2016, the American
Li-Fraumeni syndrome (LFS) is a genetic disorder linked to mutations in the p53 tumor suppressor
Researchers analyzed families with a pattern of sarcomas, breast cancer, and other cancers occurring in
Researchers tested cells from people with Li-Fraumeni Syndrome (LFS), a genetic condition that increases cancer
Larry Ingrassia’s, A Fatal Inheritance, is the most comprehensive biography of Li-Fraumeni syndrome for the
Culture Matters: Individuals affected by LFS reported a wide range of experiences with this rare
Adolescents and young adults (AYAs) reported family communication difficulties related to LFS that
Although the reduced risk of breast cancer with breastfeeding has not been studied with Li-Fraumeni
From Amazon: The most comprehensive guide available on hereditary cancers, from
This study examined anxiety and depression in mothers of newborns carrying the
Author Sharek A. Gadd was born in a midwestern commune 1971, and grew up in
Proudly sponsored by the LFS Association and available through Amazon:
This book is
With advances in genetic testing, researchers and providers have been facing challenges in interpreting the
From Amazon: Butterfly Kisses and Wishes on Wings, an award-winning children’s book,
Data analysis indicated that the perceived benefits of screening included early detection, increased peace of
Published by AACR in 2017, this publication was written by some of the invaluable members
Let There Be Light is a 2017 faith-based film about an atheist (Kevin Sorbo) and his
From Amazon: The story of the search for p53–the most important
Despite limited empirical evidence on the benefits and risks of TP53 testing in childhood, most
Monograph on Li-Fraumeni syndrome written by Dr. David Malkin and edited by
By Thierry Soussi
The history of p53 and the different interpretations of its role in cells
Edited by our dear friend and late LFSA Medical and Scientific Advisory Board Member Pierre
Genetic Counselors’ LibraryLFS Association2026-01-30T15:10:26-05:00
Cancer Resilient Elephants 
