Whole Body MRI Anxiety
A unique aspect of the LFSA International Symposium is the intersection of LFS families among globally renowned medical and scientific experts.
Another survey opportunity: Risk-reducing mastectomy decision making process for adolescents and young adults with Li-Fraumeni Syndrome
Another invitation to participate in a study about the risk-reducing mastectomy decision making process for adolescents and young adults with Li-Fraumeni
Jenn Perry on WEEI for Jimmy Fund Telethon
LFSA founder Jenn Perry shares her family's LFS story and what motivates her to advocate for research and advancements to support those
Barbara
I discovered the syndrome in January 2021, after my uncle underwent genetic testing in an attempt to find a better
Isabel
I discovered Li-Fraumeni syndrome in 2017, after breast cancer at the age of 20. The oncologist requested genetic testing,
Janaína
I lost my mother to cancer in 2018. She had two types: lung carcinoma and brain astrocytoma. They mentioned it
Fernanda
I discovered LFS in 2022 after treatment for advanced breast cancer! I needed to take the test because I
Optimizing shared decision-making for risk-reducing mastectomy in women with Li–Fraumeni syndrome using patient-reported outcome measures
Li-Fraumeni syndrome (LFS) researchers in Brazil studied factors in determining quality of life issues for women living with LFS who consider risk-reducing mastectomies –
Whole Body MRI Anxiety
A unique aspect of the LFSA International Symposium is the intersection of LFS families among globally renowned
Another survey opportunity: Risk-reducing mastectomy decision making process for adolescents and young adults with Li-Fraumeni Syndrome
Another invitation to participate in a study about the risk-reducing mastectomy decision making process for adolescents and
Jenn Perry on WEEI for Jimmy Fund Telethon
LFSA founder Jenn Perry shares her family's LFS story and what motivates her to advocate for research
Debora
Debora Scardino Mancebo, 34 years old, from São Paulo, Brazil. She had breast cancer at 30 years old. Cancer has always been something I had
Olivia
Olívia Naves, 22 years old, she never had cancer, from São Paulo, Brazil Hello! My name is Olívia Naves and I’m 22 years old. Having
Ana
Ana Caroline, 37 years old, from Belo Horizonte, Brazil. Never had cancer. When I was diagnosed with Li-Fraumeni, I was impacted in many ways because
Lakita
Lakita was born healthy with no medical issues in 2006 and loved dancing and art. At the age of 10 In the year (2017) she
Family communication challenges of adolescents and young adults with Li-Fraumeni syndrome: Implications for psychosocial care
Adolescents and young adults (AYAs) reported family communication difficulties related to LFS that negatively affected their emotional well-being. Stress related to LFS and major life
Breastfeeding reduces the risk of breast cancer
Although the reduced risk of breast cancer with breastfeeding has not been studied with Li-Fraumeni syndrome, in particular, this review of breast feeding and the
