Lakita Frida – the Face of Resilience
Lakita Frida was an energetic dynamo when she attended her first LFSA Youth Workshop in New York City back in 2023. This
Radiotherapy in Li-Fraumeni Syndrome: From Biological Concern to Personalized Clinical Decision-Making
The use of radiation is a challenge for Li-Fraumeni syndrome patients in regard to the increased risk of developing secondary, radiation-induced cancers.
Cancer’s Financial Impact on Young Adults – includes Financial Resources & Useful Tips
The American Association of Cancer Research (AACR) has published a useful article on the financial impact of young adults who have been diagnosed
LFSA – Africa! “Rare genetic disorder that helps cancer run in families”
Lakita at the LFSA's Youth Workshop in 2023 LFSA - Africa's Media Relations Specialist Joel Magu has published
Facing Sarcoma: Science, Loss, & the Power of Advocacy Podcast
Hosted by Upstate Medical University during Sarcoma Awareness Month, LFSA’s Kathy Higgins, Director of Education and Awareness, sat down
p53 Prophylactic Therapy for Cancer Prevention
Researchers in Singapore, Professor Kanaga Sagapathy and Christian Krueger, have published research demonstrating that introducing a third copy of the
p53 Prophylactic Therapy for Cancer Prevention
Cancer Resilient Elephants The tumor suppressor Tp53 is the most mutated gene in cancers. Germ-line variations in Tp53
Key Points for Individuals with a Variant of Uncertain Significance (VUS) in the TP53 Gene
Genetic testing is not always a one and done process: the classification of a variant may change over time, technologies improve and better testing
Lakita Frida – the Face of Resilience
Lakita Frida was an energetic dynamo when she attended her first LFSA Youth Workshop in New York City
Radiotherapy in Li-Fraumeni Syndrome: From Biological Concern to Personalized Clinical Decision-Making
The use of radiation is a challenge for Li-Fraumeni syndrome patients in regard to the increased risk of
Cancer’s Financial Impact on Young Adults – includes Financial Resources & Useful Tips
The American Association of Cancer Research (AACR) has published a useful article on the financial impact of young adults
Update on Cancer Screening Recommendations for Individuals with Li-Fraumeni Syndrome
Published March 2025 by American Association for Cancer Research (AACR) is the updated version of the “Toronto Protocol,” the widely recognized screening recommendations for
Li-Fraumeni syndrome: predicting cancer risk more precisely
The two MHH researchers Lucas John Müntnich and Professor Christian Kratz refer to the cluster analysis of the study, according to which cancer-free survival
Radiotherapy results in decreased time to second cancer in children with Li Fraumeni syndrome
UK researchers conducted a retrospective case-series study of four children diagnosed with solid cancers at age 16 or younger, aiming to assess the time to
Clustering of TP53 variants into functional classes correlates with cancer risk and identifies different phenotypes of Li-Fraumeni syndrome
High resolution clustering of TP53 variants into functional classes correlates with cancer risk among germline variant carriers and identifies different phenotypes of the Li-Fraumeni Syndrome.
Cancer Screening Recommendations for Individuals with Li-Fraumeni Syndrome (“Toronto Protocol”)
In October 2016, the American Association for Cancer Research organized a meeting with international experts on Li-Fraumeni Syndrome (LFS) to review the current understanding of
Liquid Biopsy for Li-Fraumeni Syndrome Cancer Screening: Survey Study
We invite you to participate in a survey about your experiences receiving cancer screening for Li-Fraumeni Syndrome (LFS), and your thoughts about an upcoming clinical
