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Noelle’s LFS Fight Club

Noelle Johnson and her team have returned for the third consecutive year to swim, bike, and run a triathlon to raise money for the Li-Fraumeni Syndrome Association! Li-Fraumeni Syndrome (LFS) is a rare inherited genetic cancer disorder that greatly increases the risk of developing cancer during a lifetime.

Noelle survived her first sarcoma cancer at the age of 21. At the time, her treatment included surgery, radiation and chemotherapy. Through genetic testing years later in 2013, Noelle uncovered the mutation of her TP53 gene, which is LFS. She’s since had nearly a dozen surgeries, including a double mastectomy and full hysterectomy, and undergoes full-body scans and blood work in her fight to remain cancer free.

Today, at 40, Noelle is racing in her third sprint triathlon to support LFS research and encourage genetic testing for the TP53 gene mutation. She recently had precancerous lumps surgically removed from her arm and leg, but is itching to get back to triathlon training once her stitches are removed and the doctors give her the go ahead. Nothing can stop this Wonder Woman…as her friends affectionately call her! Her story of strength and faith is truly miraculous.

Noelle’s LFS Fight Club has raised nearly $5,000 for the Li-Fraumeni Syndrome Association, and we’re not done yet! Please join Noelle’s friends and family to continue the fight against LFS with a donation. All donations go directly to the Li-Fraumeni Syndrome Association, which supports LFS cancer research and provides support services for individuals and families with Li-Fraumeni Syndrome.

You may not be able to contribute monetarily at this time, but please share this website link to help raise awareness about LFS. We believe it is not as rare as you think. The science and research behind this syndrome have only just begun. Identification, knowledge and preemptive action are the best ways to fight LFS and other genetically-linked cancers!

So please share, share, share! And donate here if you can!