Events for April 1, 2000 – April 26, 2024 – Li-Fraumeni Syndrome Association
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June 2017
Salute! Boston 2017
Brahmin’s Signature 1920s Cocktail Samplers – Appetizers – Raffle - Optional Wine Tasting
Find out more »Birdies for Charity
LFSA is pleased to announce that we are an official participant in Birdies for Charity at this year’s Traveler’s Championship golf tournament, taking place June 19-25 in Cromwell, CT. Birdies for Charity is a pledge-based fundraiser that is based upon the number of birdies made during the tournament. You make a pledge per birdie made and LFSA receives 100% of your donation. For example, if you pledge .20 per birdie and 1500 birdies are made over the course of the…
Find out more »July 2017
Mo Songs for Kerry 2017
Mo Songs for Kerry is a Cancer Research Charity Fundraiser Raising awareness for Li-Fraumeni Syndrome. Help us make a difference!
Find out more »September 2017
October 2017
Carly Grant – Mohawk Hudson River Marathon 2017
My name is Carly. I’m a mother of 4 and a cancer genetic counselor at Massachusetts General Hospital and formerly at Dana-Farber Cancer Institute in Boston, MA. I am an avid runner and currently training for the Mohawk Hudson River Marathon in upstate New York on October 8th. I am raising money for the Li-Fraumeni Syndrome Association. Li-Fraumeni syndrome (LFS) is a high risk hereditary cancer predisposition syndrome. Families with LFS face lifelong uncertainty, anxiety, and possible loss of loved…
Find out more »April 2018
4th International LFS Association Symposium
The 4th International LFS Association Symposium hosted by The Hospital for Sick Children and in partnership with the LiFE Consortium was held April 25 through 29, 2018, under the auspices of The Hospital for Sick Children, in Ontario, Canada. Click here to see event highlights, including presentation videos and photo gallery.
Find out more »May 2019
Webinar – Talking to Kids About LFS
Please join us for the “Ask a Genetic Counselor” Webinar on Sunday, May 19th at 2pm! Topic: Talking to Kids About LFS Take advantage of this special opportunity to ask questions and get valuable information on talking with children about LFS from the LFS community's most trusted genetic counselors. Upon registering, you'll have the opportunity to submit your questions. The genetic counselor will address these questions first, at the beginning of the Q&A session. You will still have the opportunity…
Find out more »June 2019
2019 “3v3” con dade in Acona, Italy
Next weekend, June 28, 29, & 30, in Ancona, Italy, is the third annual “3v3 con Dade,” a three-day basketball tournament in memory of Davide Pagani. Donations collected by his beloved mother and his friends will be forwarded to the LFS Association to benefit our Youth Program initiatives! Follow and support Davide’s friends and family on Facebook!
Find out more »July 2019
6th Annual Mo Songs for Kerry
Mo Songs for Kerry 6th Annual Cancer Fundraiser! July 29, 2019 10am to 8pm Sayre, PA Our community event will feature a large craft show, music festival, BBQ, car was, corn hole tournament and games for the kids. Click here to learn more!
Find out more »August 2019
Youth Workshop 2019 – Boston, MA
The LFS Association is now accepting registrants for our second Youth Workshop to be held August 23rd, 24th and 25th! Our inaugural pilot program, first held in 2017, was hosted at the Huntsman Cancer Institute and was a terrific experience for the 21 teens with LFS who traveled in from around the world! The friendships that developed, not only between the teens, but also amongst the parents, have proven to be treasured relationships since our first workshop. This year’s workshop…
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