The psychosocial effects of the Li-Fraumeni Education and Early Detection (LEAD) program on individuals with Li-Fraumeni syndrome
Data analysis indicated that the perceived benefits of screening included early detection, increased peace of mind, centralized care, empowerment through knowledge, and a sense that screening made living with LFS more manageable. Reported drawbacks included logistical challenges, difficulty navigating the healthcare system, the physically and emotionally taxing nature of screening, and strong negative emotional responses
