From Amazon: Mothers are superheroes when they're battling cancer, and this empowering picture book gives them an honest yet spirited way to share the difficult experience with their kids. Author Jessica Reid Sliwerski was diagnosed with breast cancer four months after giving birth to her daughter. And through all the stages of treatment—surgery, chemotherapy,
Published by AACR in 2017, this publication was written by some of the invaluable members of LFSA's Genetic Counseling Advisory Group. In this article, the authors present a genetic counseling framework for oncology professionals. They discuss key points of entry and offer recommendations on when and how to provide initial and follow-up genetic counseling
Let There Be Light is a 2017 faith-based film about an atheist (Kevin Sorbo) who, after a serious car accident, "sees the light," and is prompted to reevaluate his beliefs and life choices. In turn, he reunites with his family in time to confront the emotional toll of having his wife develop cancer due to the
From Amazon: The story of the search for p53--the most important gene in medicine. All of us have lurking in our DNA a most remarkable gene: it is known simply as p53 and its job is to protect us from cancer. p53: The Gene that Cracked the Cancer Code tells the story of the discovery
Despite limited empirical evidence on the benefits and risks of TP53 testing in childhood, most parents in this study readily chose testing and identified multiple benefits. The authors conclude that, within the context of a clinical Li-Fraumeni syndrome diagnosis, parents should continue to be offered TP53 testing for their children, receive clear counseling on potential
WHAT DOES IT MEAN TO BE A KICK-ASS FAIRY? Looking for a fairy tale to make into a musical? Look somewhere else. Linda Zercoe offers up a series of unfortunate events in a memoir that rivals the stories of the Brothers Grimm. Life can be capricious and cruel. In this memoir, the author-heroine faces
On November 2, 2010, the National Cancer Institute convened a workshop at the National Institutes of Health in Bethesda, Maryland, bringing together clinicians and scientists, as well as individuals from families with LFS, to review the state of the science, address clinical management issues, stimulate collaborative research, and engage the LFS family community. This
Monograph on Li-Fraumeni syndrome written by Dr. David Malkin and edited by Arnold Levine: In 1969, Li and Fraumeni described a notable cancer predisposition syndrome. Using a classic epidemiological approach, they conducted a retrospective review of 280 medical charts and 418 death certificates of children diagnosed with rhabdomyosarcoma in the U.S. between 1960 and 1964.
By Thierry Soussi The history of p53 and the different interpretations of its role in cells highlight how scientific paradigms can shape research fields. It also provides valuable lessons for young scientists looking for an engaging and impactful research topic. (October 8, 2010)
Edited by our dear friend and late LFSA Medical and Scientific Advisory Board Member Pierre Hainaut, along with LFS researcher Klas Wiman, this 2005 compilation has helped launch the trajectory of TP53 and LFS research. Still available through Amazon: Given the complexity of the field and the fact that data pertaining to each particular aspects
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