Larry Ingrassia’s, A Fatal Inheritance, is the most comprehensive biography of Li-Fraumeni syndrome for the lay reader to date. Though this book reads like a riveting medical mystery, it is also an informative resource for medical students and providers, genetic counselors, and families riddled with early onset, rare, and/or multiple cancers, and even the
From Amazon: The most comprehensive guide available on hereditary cancers, from understanding risk, prevention, and genetic counseling and testing to treatment, quality of life, and more. Up to 10 percent of cancers are caused by inherited mutations in specific genes. Finding out that you or your loved ones may be at increased risk of developing
Author Sharek A. Gadd was born in a midwestern commune 1971, and grew up in a nine-member family struggling with Li-Fraumeni syndrome. The illness, deaths, and grief drove Mr. Gadd to join the U.S. Army. After his military service, he returned to White River, Indiana, wherein practices multimedia arts and crafts. This is his previously
LFS and Living My Best is an LFS resource for children aged 8 -13 by the LFS Association's Genetic Counseling Advisory Group. Download and review the booklet and decide if it’s the right time to share with your child. The booklet is currently in English and translated into Portuguese, with many other versions coming soon
Proudly sponsored by the LFS Association and available through Amazon: This book is a lighthearted introduction to Li-Fraumeni Syndrome (LFS), which is an inherited genetic predisposition to a wide range of cancers. In this story, a boring day at the hospital turns into a lively adventure when Rosie and James sneak away to go exploring.
From Amazon: Butterfly Kisses and Wishes on Wings, an award-winning children's book, is a powerful listen-to/read-aloud story for children with a family member or friend who has been diagnosed with cancer. The book's rich, intuitive writing and beautiful, reflective illustrations facilitate a child's understanding of cancer. The storyline and drawings offer hope and encourage communication
From Amazon: Mothers are superheroes when they're battling cancer, and this empowering picture book gives them an honest yet spirited way to share the difficult experience with their kids. Author Jessica Reid Sliwerski was diagnosed with breast cancer four months after giving birth to her daughter. And through all the stages of treatment—surgery, chemotherapy,
From Amazon: The story of the search for p53--the most important gene in medicine. All of us have lurking in our DNA a most remarkable gene: it is known simply as p53 and its job is to protect us from cancer. p53: The Gene that Cracked the Cancer Code tells the story of the discovery
WHAT DOES IT MEAN TO BE A KICK-ASS FAIRY? Looking for a fairy tale to make into a musical? Look somewhere else. Linda Zercoe offers up a series of unfortunate events in a memoir that rivals the stories of the Brothers Grimm. Life can be capricious and cruel. In this memoir, the author-heroine faces
Edited by our dear friend and late LFSA Medical and Scientific Advisory Board Member Pierre Hainaut, along with LFS researcher Klas Wiman, this 2005 compilation has helped launch the trajectory of TP53 and LFS research. Still available through Amazon: Given the complexity of the field and the fact that data pertaining to each particular aspects
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